Last week, we shared our interview with a liver transplant recipient who is living out her dreams post-transplant. Today we’d like to add the insights of 32 organ transplant recipients who took part in an online discussion hosted by PatientsLikeMe. Split equally in gender with ages ranging from 25 to 60 years old, our discussion… Continue reading Preparing for Life After an Organ Transplant
Category: Patient Experiences
PATIENTSLIKEME ANNOUNCES NEW COMMUNITY, DOGSLIKEME
Researchers Use Open Medical Network to Analyze Canine Health CAMBRIDGE, Mass. — (April 1, 2012) — PatientsLikeMe (www.patientslikeme.com), the leading online community for people with life-changing conditions, announces the opening of its doors to canines. The initial launch will be open only to dogs (Canis lupus familiaris). Future releases will allow participation of wolves, jackals, coyotes,… Continue reading PATIENTSLIKEME ANNOUNCES NEW COMMUNITY, DOGSLIKEME
Love Your Scars: An Interview with Transplant Recipient Amy Tippins
After five years of dealing with undiagnosed multiple hepatic adenomas (hemorrhaging tumors), PatientsLikeMe member Amy Tippins underwent a liver transplant in 1993. Two years ago, she received a ligament allograft using donor tissue. How does she feel about it all today? Check out our interview with this transplant activist to learn how these experiences led… Continue reading Love Your Scars: An Interview with Transplant Recipient Amy Tippins
Today’s Photo: A Celebration of Solidarity
The weather is warming up, and calendars are filling up. That means it’s time to starting thinking about spring walk/run events for your health condition! For inspiration, please meet multiple sclerosis patient NewLife (center), who led a PatientsLikeMeInMotion-sponsored team at Walk MS in St. Louis, Missouri. Including a monetary donation from PatientsLikeMe, NewLife and her… Continue reading Today’s Photo: A Celebration of Solidarity
A Peek at the March Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our March edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up… Continue reading A Peek at the March Newsletter for Members
What Do You Know About Endometriosis?
March is Endometriosis Awareness Month, which means it’s a good time to brush up on this common women’s health problem. For example, did you know that endometriosis gets its name from endometrium (en-doh-MEE-tree-um), the tissue that lines the uterus? Or that this often painful condition occurs when that tissue begins to grow in other places,… Continue reading What Do You Know About Endometriosis?
A Day in the Life of PatientsLikeMe Office Manager Alison Dutton
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features various employees from different departments. So far, we’ve featured people like User Experience Engineer Cris Necochea and Research Assistant Shivani Bhargava. Today, we share our interview with Office Manager… Continue reading A Day in the Life of PatientsLikeMe Office Manager Alison Dutton
MS Awareness Week: Real-World Descriptions (and a Poem!) from Our MS Community
We kicked off MS Awareness Month by sharing some key facts we’ve learned from our MS community (26,000+ members and counting). Now, we are digging a bit deeper in honor of MS Awareness Week. You’ve already heard about common MS symptoms as well as frequent topics in our MS forum. But what it is really like to… Continue reading MS Awareness Week: Real-World Descriptions (and a Poem!) from Our MS Community
It’s World Kidney Day. How Are Your Kidneys?
Today is World Kidney Day, a joint initiative of the International Society of Nephrology (ISN) and the International Federation of Kidney Foundations (IFKF). Since 2006, World Kidney Day has been raising awareness of the importance of our kidneys to our overall health. For example, did you know that it’s our kidneys’ job to remove toxins… Continue reading It’s World Kidney Day. How Are Your Kidneys?
Spotlighted Blogger: Interview with Lissa of “Psoriasis Girl’s Point of View”
Want to connect with and learn from psoriasis patients like you? Join PatientsLikeMe Now! (It’s free) Welcome to the sixth installment of our “Spotlighted Blogger” series. So far, we’ve interviewed patient bloggers living with gastroparesis, type I diabetes, bipolar I disorder, Parkinson’s disease and ALS, and today we introduce Lissa, a PatientsLikeMe member who has lived… Continue reading Spotlighted Blogger: Interview with Lissa of “Psoriasis Girl’s Point of View”