You may have heard of inflammatory bowel disease (IBD), but have you heard of microscopic colitis? One of several conditions under the IBD umbrella, this chronic, inflammatory disorder of the colon (aka the large intestine) can cause watery diarrhea and abdominal pain. It gets its name from the fact that microscopic examination of the intestinal… Continue reading Does Microscopic Colitis Go Away?
Category: Patient Experiences
Year in Review with the National Psoriasis Foundation
Last August, we recognized Psoriasis Awareness Month on our blog and shared some little-known facts about this autoimmune disease, which affects 7.5 million Americans. Today we learn more about 2011 research highlights – as well as upcoming initiatives – surrounding psoriasis and psoriatic arthritis in our interview with Bruce F. Bebo, PhD, the Director of… Continue reading Year in Review with the National Psoriasis Foundation
Today’s Photo: A Sea of Bright Blue in Motion
Please meet ALS patient iceberg (front right), who led a PatientsLikeMeInMotion-sponsored team at the 2011 Walk to Defeat ALS in Western Pennsylvania. We count at least 25 bright blue PatientsLikeMeInMotion t-shirts worn by the team (called “Hrezo’s Heroes”), making this one of the biggest groups we’ve sponsored! Congrats to iceberg and all of our PatientsLikeMeInMotion-sponsored… Continue reading Today’s Photo: A Sea of Bright Blue in Motion
A Peek at the December Newsletters for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our December edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to… Continue reading A Peek at the December Newsletters for Members
Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”
Last week we kicked off a new blog series featuring patient bloggers, and today, we’re pleased to present our second installment. Please meet Steve Ploussard, a longtime PatientsLikeMe member who writes a blog about living with Parkinson’s disease (PD) called “Attitude & Fitness Wins.” Steve decided that blogging was the perfect way to “come out”… Continue reading Spotlighted Blogger: Parkinson’s Patient Steve Ploussard of “Attitude & Fitness Wins”
Submit Your Best “App” Ideas to Help Teen Cancer Patients
“Young cancer patients have a lot to say as well as questions to ask, but struggle to find quality information sources where they can express this. It is even harder to find an innovative platform to visit. I believe a mobile app created exclusively for teenage cancer patients would make their quest for information not… Continue reading Submit Your Best “App” Ideas to Help Teen Cancer Patients
A Peek at the November Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our November edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to… Continue reading A Peek at the November Newsletter for Members
Write, Snap and Share for World AIDS Day
Today, December 1st, is World AIDS Day. 30 years after the first reports of AIDS in the United States, HIV – the virus that can lead to AIDS – is still a reality for 1.1 million Americans. Complicating matters is that fact that one in every five people living with HIV in the United States… Continue reading Write, Snap and Share for World AIDS Day
How to Thrive: Takeaways from TEDx Cambridge
Patient Experience Manager Kate Brigham and I attended TEDx Cambridge last week, a one-day event full of thought-provoking and inspirational talks about Ideas Worth Spreading (TED’s mission). The participants didn’t want to just survive, they wanted to Thrive, which was this year’s theme. Speakers, including our President and Co-Founder Ben Heywood, enlightened the crowd with… Continue reading How to Thrive: Takeaways from TEDx Cambridge
Are Your Lungs Trying to Tell You Something?
Chronic coughing and wheezing. Frequent shortness of breath. Struggling for air. These are some of the symptoms of chronic obstructive pulmonary disease (COPD), which affects 24 million Americans (or approximately one in five adults over the age of 45). As many as half of them don’t realize they have COPD, however, as many people mistake… Continue reading Are Your Lungs Trying to Tell You Something?