What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our August edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to recently,… Continue reading A Peek at the September Newsletter for Members
Category: Patient Experiences
Be of Good Heart Today
Today, September 29th, is World Heart Day. Sponsored by the World Heart Federation, this annual event was started in 2000 to raise awareness about heart disease and stroke, the world’s leading cause of death with more than 17.1 million lives lost each year. All around the globe, activities such as talks, screenings, walks, concerts and… Continue reading Be of Good Heart Today
How Privacy Impacts Personalized Medicine
“We are standing on the edge of a new information age, and this new information age is going to clash with our existing understanding of concepts such as privacy and how we think about healthcare data and what should be done with it.” – Jamie Heywood PatientsLikeMe Chairman Jamie Heywood recently traveled to Zurich, Switzerland,… Continue reading How Privacy Impacts Personalized Medicine
PatientsLikeMeOnCall: Monitoring Health Hazards with Modern Tools
Welcome to the fifth installment of our latest PatientsLikeMeOnCall podcast series, entitled “It’s Friday – Let’s Journal Club.” This week’s guest is Dr. Taha Kass-Hout, Deputy Director of the Division of Notifiable Diseases and Healthcare Information at the CDC. He came by PatientsLikeMe headquarters recently to discuss the BioSense project, an initiative launched following 9/11… Continue reading PatientsLikeMeOnCall: Monitoring Health Hazards with Modern Tools
Our Pledge to You, the Patient
“We founded PatientsLikeMe on the concept that sharing health data could lead to a more empowered patient and better overall healthcare system. It’s an exciting and giant step forward for us as an industry as we unite around making health data more accessible to those that matter most – the patients.” – Ben Heywood, PatientsLikeMe… Continue reading Our Pledge to You, the Patient
“Go Back for the Future” of Parkinson’s Research
Haven’t heard of the Nike MAG shoe? Perhaps that’s because it’s only been worn by one person – the indelible Marty McFly (Michael J. Fox). Yet today, this rarest of Nike Footwear will become a reality for a lucky few. 1,500 pairs of “the most famous shoe never made” are being auctioned off on Ebay… Continue reading “Go Back for the Future” of Parkinson’s Research
September Is Recovery Month
Every September, the Substance Abuse & Mental Health Services Administration (SAMHSA) observes Recovery Month. The goal is to promote the societal benefits of treatment for substance use and mental disorders, celebrate people in recovery, recognize treatment providers and spread the message that recovery is possible. As the SAMHSA slogan says, “Prevention works, treatment is effective… Continue reading September Is Recovery Month
PatientsLikeMeOnCall: How Genetics Bears on Your Condition
Welcome to the fourth installment of our new PatientsLikeMeOnCall podcast series entitled “It’s Friday – Let’s Journal Club.” This week’s interview is with PatientsLikeMe’s own Catherine Brownstein, PhD, MPH, who recently won a highly competitive award from the International Congress of Human Genetics (ICHG). One of our in-house Research Scientists, Dr. Brownstein captivated PatientsLikeMe headquarters… Continue reading PatientsLikeMeOnCall: How Genetics Bears on Your Condition
Scoring with ATEC on PatientsLikeMe: New Feature for Patients with Autism
When we expanded PatientsLikeMe from serving a couple dozen conditions to serving several hundred overnight, we realized very quickly that our work was only just beginning. Since that early morning in April, our members (and staff) have added a lot more data to the system, including core symptom groups and commonly prescribed treatment surveys for… Continue reading Scoring with ATEC on PatientsLikeMe: New Feature for Patients with Autism
A Peek at Our August Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our August edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up… Continue reading A Peek at Our August Newsletter for Members