That’s right – thanks to your awesome rallying, we reached our 24 Days of Giving goal again! Together, the PatientsLikeMe community donated a total of 428,459 health data points. We’ll be making a $25,000 donation to Make-A- Wish® Massachusetts and Rhode Island to help fund life-affirming wishes for seriously ill children. What did the community… Continue reading Another successful 24 Days of Giving!
Tag: 24 days of giving
The power of your data: Patient empowerment
We’re more than halfway through 24 Days of Giving and we’ve been sharing how patient data has the power to create better communities, better care and a better you. So, while we’re on the subject of you – let’s talk more about how patients see themselves as the captains of their own health when it… Continue reading The power of your data: Patient empowerment
The power of your data: How it works for you
For these 24 Days of Giving, we’ve been sharing how patient data has the power to change healthcare for the better. But how does the data you donate work for YOU in your own health journey? PatientsLikeMe members are starting to answer that as part of an ongoing initiative, giving us feedback about the benefits… Continue reading The power of your data: How it works for you
24 Days of Giving: Halfway checkpoint
The midpoint. The halfway mark. Call it what you want, but we’re smack in the middle of 24 Days of Giving. So, where do we stand on the data donation front? Let’s take a look: 12,340 treatment reports 90,610 symptom reports 72,593 health outcomes So if you’ve been donating, keep at it. If not, why… Continue reading 24 Days of Giving: Halfway checkpoint
The power of your data: Improving clinical trials
For these 24 Days of Giving, we’re rethinking what it means to give and how the power of patient data can change healthcare for the better. Another example of the impact your data can have? Making the clinical trial experience better for patients like you. Now let’s be real, that’s no short order. So where… Continue reading The power of your data: Improving clinical trials
The power of your data: Members define compassionate care
For these 24 Days of Giving, we’re rethinking what it means to give and how the power of patient data can change healthcare for the better. Here’s a snapshot of your data in action. Let’s talk compassionate care. Our partners at the Schwartz Center for Compassionate Healthcare had developed a scale based on input from… Continue reading The power of your data: Members define compassionate care
Ryan and Emma’s stories: Make-A-Wish® Massachusetts and Rhode Island
Last December, patients like you came together to donate more than 476,000 health data points, including nearly 30,000 treatment reports and close to 120,000 symptom reports. The data that everyone selflessly donated has a heartbeat that will keep on giving – helping other patients like you and accelerating research. And because you helped us reach… Continue reading Ryan and Emma’s stories: Make-A-Wish® Massachusetts and Rhode Island
PatientsLikeMe Kicks off 3rd Annual “24 Days of Giving”
People Living With Chronic Conditions Encouraged to Donate Health Data for 24 Days November 29, 2016 – CAMBRIDGE, Mass. – Beginning today on #GivingTuesday, PatientsLikeMe is kicking off its third-annual #24DaysofGiving to celebrate “the tradition of generosity.” Over the next 24 days, PatientsLikeMe is asking members to rally together, rethink what it means to give… Continue reading PatientsLikeMe Kicks off 3rd Annual “24 Days of Giving”
Your data doing good: Our collaboration with the FDA
During #24DaysofGiving this December, we’ve been highlighting all the good your health data is doing. For this one, we wanted to share more about how the data you donate is the centerpiece of a new collaboration between PatientsLikeMe and the Food and Drug Administration (FDA). Even after a new medication or treatment makes it through… Continue reading Your data doing good: Our collaboration with the FDA
Your data doing good: The Lithium study
During #24DaysofGiving this December, we’re highlighting all the good your health data donations are doing. And this time, we’re starting at the beginning. As you probably know already, PatientsLikeMe launched its first community in 2006 for people living with ALS, also known as Lou Gehrig’s disease. Two years later, we had an amazingly engaged and… Continue reading Your data doing good: The Lithium study