PatientsLikeMeOnCall: Tapping into a Treasure Trove of Information

Last Friday we kicked off our new weekly podcast series called “It’s Friday – Let’s Journal Club.” Thanks to everyone who tuned in. This week’s guest interview is with Dr. Kevin Dykstra, PhD, who is President and CEO of qPharmetra, a pharmacometric consulting company. Dr. Dykstra stopped by PatientsLikeMe headquarters to talk to our team… Continue reading PatientsLikeMeOnCall: Tapping into a Treasure Trove of Information

PatientsLikeMeOnCall: From Open Data to Actionable Data

Every Friday, PatientsLikeMe holds “Journal Club” in our Boston headquarters with a different guest speaker. Last week we were privileged to hear from Dave Hale, Project Manager for Pillbox, a National Library of Medicine (NLM) and Federal Drug Administration (FDA) patient safety initiative. And thanks to PatientsLikeMeOnCall’s new podcast series “It’s Friday – Let’s Journal… Continue reading PatientsLikeMeOnCall: From Open Data to Actionable Data

Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)

With every new member at PatientsLikeMe, there is more data generated for research, more dialogue about individual experiences, and a more expansive support network.  Additionally, with more patients we can become the world’s largest and loudest representative of the patient voice.  To that end, our job in marketing is to share your stories and tell… Continue reading Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)

The Patient Voice | Episode 3: When a Community “Becomes Family”

“I’ve met a lot of people from all over the world, we are all one happy family.” – Vigwig Around and around we go, strap on in for Episode 3 of our podcast series, “The Patient Voice.”   To continue with the PatientsLikeMe Parkinson’s Disease (PD) quilt story, our guest today is community member VigWig. A… Continue reading The Patient Voice | Episode 3: When a Community “Becomes Family”

The Patient Voice | Episode 2: The Warmth Of A Quilt

“When I saw the quilt, I was like, ‘Oh my gosh! It’s beautiful!’…I felt like I was visiting with all of these other people.” – BrownCat87 Wrap yourself up with the PatientsLikeMe Parkinson’s Disease quilt and Episode 2 of “The Patient Voice” podcast series. In our first episode, we heard from PokieToo, creator of the… Continue reading The Patient Voice | Episode 2: The Warmth Of A Quilt

New Podcast Series: “The Patient Voice” Premieres This Thursday

On Thursday October 7, 2010, the PatientsLikeMeOnCall TM podcast is proud to present a new series called “The Patient Voice.”  Through these podcasts, you’ll hear emotional and inspiring stories from our community members that demonstrate the type of sharing and positive connections being made by patients on our site and how these connections are affecting… Continue reading New Podcast Series: “The Patient Voice” Premieres This Thursday

Tell The World: Parkinson’s Patients are “In Motion”

The PatientsLikeMeInMotion sponsorship program has been a tremendous success so far this year! Sponsorship requests from members participating in nonprofit events are flying in by the second from all over the country.  It’s exciting to see our members are as active offline as they are online about raising awareness of their condition.  The PatientsLikeMeInMotion program… Continue reading Tell The World: Parkinson’s Patients are “In Motion”