Here are some of the media items that grabbed our attention recently. Four Things I Learned from Living with a Chronic Illness Wise advice from a teenager who had to give up competitive gymnastics and find a new perspective on life after being diagnosed with a disease that causes chronic pain. Access to Doctors’ Notes… Continue reading What We’re Reading at PatientsLikeMe
Tag: ALS Untangled
Celebrate the Role of Social Media Today
Mashable, the pioneering digital and social media news site, has pronounced today Social Media Day. Why? “Social media has changed our lives,” they wrote in 2010, prior to launching the event. “It has not only changed the way we communicate, but the way we connect with one another, consume our news, conduct our work, organize… Continue reading Celebrate the Role of Social Media Today
Share Your Data to Untangle ALS!
Our ALS Community recently broke the 5,000-member mark, making it the largest of its kind in the world as well as the ideal platform for expedited research. And that’s just what we’re working on. Since the community’s launch in 2006, we’ve conducted a number of research studies, both internally and in collaboration with leaders in… Continue reading Share Your Data to Untangle ALS!