Patients at work: Member Nancy on being her own boss

We recently launched a blog series about patients who’ve started (or are gearing up to launch) their own businesses, sparking a discussion around how to manage your health without giving up on your career goals. Say hello to Nancy (@spicerna), who sat down with us to discuss how she finds a balance between living with… Continue reading Patients at work: Member Nancy on being her own boss

Patient Advocacy: An interview with artist and activist Regina Holliday

Regina Holliday wears many hats. She’s an artist, activist, speaker and author, and she’s painted hundreds of patient stories on the backs of jackets in an ongoing art project called The Walking Gallery. Through her art, Regina promotes better care, treatment and transparency in healthcare. She’s been an advocate of PatientsLikeMe for quite some time (two… Continue reading Patient Advocacy: An interview with artist and activist Regina Holliday

Patients at work: Member Jenny launches online craft shop on Etsy

  A few weeks ago, we kicked off a new blog series about patients who have started (or are working on launching) their own businesses. We’ll be featuring some enterprising members and learning more about how they manage their health and their career goals at the same time. Today, we’d like introduce Jenny, (jhound), a… Continue reading Patients at work: Member Jenny launches online craft shop on Etsy

PatientsLikeMe usability study for mobile app

Designing a new app is like designing a car. Your engineer and designer may have done a flawless job, but nothing matters until the person actually steps into the driver’s seat and test-drives the product. So when it came time for us to launch the first pass at our new mobile app, called PLM Connect,… Continue reading PatientsLikeMe usability study for mobile app

Art as Therapy in Parkinson’s Disease

Do you have a creative outlet that helps you cope with your health condition?  Here are two examples of Parkinson’s disease (PD) patients in our community who are expressing their emotions through painting, despite hand tremors and other challenging symptoms.  (See even more PD patient artwork in this inspiring forum thread.) “Iggy the Iguana” by… Continue reading Art as Therapy in Parkinson’s Disease