Arthritis by the numbers: 50 million+ Americans live with it

May is National Arthritis Awareness Month. How many people are living with this condition? 53 million Americans and counting. Various forms of arthritis – including osteoarthritis, rheumatoid arthritis, gout, lupus and fibromyalgia – are all on the rise, according to the CDC. Let’s look at some other facts and stats about arthritis, courtesy of the… Continue reading Arthritis by the numbers: 50 million+ Americans live with it

Arthritis Awareness Month: Shedding light on an invisible condition

It’s National Arthritis Awareness Month, and while more than 50 million Americans live with it, arthritis is often an invisible condition. It can be hard for those who don’t have it to understand what it’s all about and how it impacts a person. So let’s test your arthritis knowledge — did you know any of the… Continue reading Arthritis Awareness Month: Shedding light on an invisible condition

Arthritis Awareness 101

You may have heard that arthritis affects the joints, but did you know that it’s an umbrella term used to describe over 100 medical conditions and diseases (known as rheumatic diseases)?1 Conditions that fall underneath forms of “arthritis” include rheumatoid arthritis, gout, lupus, and fibromyalgia. And the symptoms can vary depending on the type of arthritis and the person… Continue reading Arthritis Awareness 101

Spreading the word for arthritis

Lupus? Check. Fibromyalgia and ME/CFS? Check. ALS, cystic fibrosis, Huntington’s disease, mental health, schizophrenia, anxiety and depression? Check! There’s been a ton of awareness going on in May, but there’s still one more theme to go – National Arthritis Awareness Month. This month, the Arthritis Foundation (AF) is encouraging us all to spread the word to… Continue reading Spreading the word for arthritis

Spirited Support at the Jingle Bell Run/Walk for Arthritis

We’ve sponsored hundreds of fundraising teams through our PatientsLikeMeInMotion program, but we’re pretty sure this team wins the blue ribbon for most festive. Please meet PatientsLikeMe member Kennqueen’s very colorful team, who donned their best tutus and striped socks for the Jingle Bell Run/Walk for Arthritis in Richland, Washington, on November 17, 2012.  Kennqueen has… Continue reading Spirited Support at the Jingle Bell Run/Walk for Arthritis

Get Moving for Arthritis Awareness Month

Did you know that arthritis is the most common cause of disability in the US?  Or that this disease – which affects some 50 million Americans – has more than 100 different types? May is Arthritis Awareness Month, a nationwide event sponsored by the Arthritis Foundation (AF) to raise awareness and funds.  All across the… Continue reading Get Moving for Arthritis Awareness Month

Harnessing New Media for Patient Advocacy (Part II)

A few weeks ago, I was invited to present on behalf of PatientsLikeMe at the Arthritis Foundation workshop held in Newport, RI.  The presentation was on how to “harness new media for patient advocacy” – the same as what I presented at a workshop for non-profits in northern New England in August.  This time the… Continue reading Harnessing New Media for Patient Advocacy (Part II)

Harnessing “New Media” for Patient Advocacy

The media is abuzz at the moment with stories about social networks like Facebook and Twitter, carrying pieces on the good (Facebook Fan Page raises $10,000 for a Silicon Valley Food Bank), the bad (Facebook users are leaving out of mistrust and boredom), and the controversial (Social networking site for living organ donors). In the… Continue reading Harnessing “New Media” for Patient Advocacy