Recognizing Autism Awareness Month

Have you seen the awareness ribbon with the puzzle pattern?  It’s the symbol for autism awareness, with the puzzle pieces representing the mystery and complexity of autism spectrum disorders (ASD).  The different colors and shapes also highlight the diversity of families living with this condition, which occurs in 1 in 110 births in the US… Continue reading Recognizing Autism Awareness Month

Scoring with ATEC on PatientsLikeMe: New Feature for Patients with Autism

When we expanded PatientsLikeMe from serving a couple dozen conditions to serving several hundred overnight, we realized very quickly that our work was only just beginning. Since that early morning in April, our members (and staff) have added a lot more data to the system, including core symptom groups and commonly prescribed treatment surveys for… Continue reading Scoring with ATEC on PatientsLikeMe: New Feature for Patients with Autism

Taking It to the Streets: The Spring PatientsLikeMeInMotion Report

Every year, PatientsLikeMe sponsors run/walk/bike teams around the country through PatientsLikeMeInMotion. Led by a three-star member – someone with a complete health profile at PatientsLikeMe – each team receives bright blue PatientsLikeMe t-shirts, business cards and a donation towards their fundraising goal. Some of the events our members participate in include the Parkinson’s Unity Walk,… Continue reading Taking It to the Streets: The Spring PatientsLikeMeInMotion Report

Calling All Families Affected by Autism

Back in April, we wrote a blog post observing Autism Awareness Month. At that time, we had just over 100 members with an autism spectrum disorder (ASD). Now, just two months later, we’re pleased to report that our ASD membership has more than tripled with over 350 members reporting ASD and nearly 100 reporting Asperger’s… Continue reading Calling All Families Affected by Autism

How Much Do You Know About Autism and IBS?

“When you have a child with special needs, you really start to feel like you’re constantly the squeaky wheel as you advocate for your child. After a while, you start to wonder…’is it me?’ But I’ve already found several other parent advocates who are going through the same thing.” – Autism Caregiver It’s Autism Awareness… Continue reading How Much Do You Know About Autism and IBS?