Last month, PatientsLikeMe was honored to host a special visitor — Dr. Jill Biden was in town as part of the Cancer Moonshot Initiative announced by President Obama in his 2016 State of the Union Address. She made time to stop by our office to learn more about how PatientsLikeMe works and how members use… Continue reading PatientsLikeMe Co-founder Ben Heywood reflects on a recent visit from Dr. Jill Biden
Tag: Ben Heywood
RWJF Awards Grant to PatientsLikeMe to Develop New Measures for Healthcare Performance
Patient Network to Work with the National Quality Forum to Ensure Patients Drive Healthcare Value CAMBRIDGE, MA., December 8, 2015—PatientsLikeMe has been awarded a $900,000 grant from the Robert Wood Johnson Foundation (RWJF) to help jumpstart changes that will amplify the patient voice in the measurement of healthcare performance. A portion of the grant funds… Continue reading RWJF Awards Grant to PatientsLikeMe to Develop New Measures for Healthcare Performance
A new collaboration and the work ahead: An interview with PatientsLikeMe Co-founder and President Ben Heywood
Earlier this week, PatientsLikeMe announced a five-year collaboration with Genentech. Our goal? To bring your experience – the patient experience – to a company that wants to learn more from the people who are living with serious diseases, and to better integrate your insights into their decision-making as they develop new medicines. PatientsLikeMe Co-founder and… Continue reading A new collaboration and the work ahead: An interview with PatientsLikeMe Co-founder and President Ben Heywood
PatientsLikeMe creates largest open registry of IPF patients in the world
Community One of Website’s Fastest Growing; Reveals Real-World Picture Of Daily Life With the Rare Lung Disease CAMBRIDGE, Mass.— August 22, 2013—In a few short months, PatientsLikeMe has created the largest open registry of idiopathic pulmonary fibrosis (IPF) patients online, and some of the most current patient-reported data on the disease. The information the community… Continue reading PatientsLikeMe creates largest open registry of IPF patients in the world
PatientsLikeMe Names Kim Goodwin and Sally Okun to New Web and Patient Advocacy Positions
CAMBRIDGE, Mass.— March 19, 2013—PatientsLikeMe appoints Kim Goodwin and Sally Okun RN to two newly-created positions that will keep patient needs upfront as the company continues to enhance its website and drive industry and government to make more patient-centric decisions. Kim Goodwin has been named Vice President (VP) of User Experience (UX) and Sally Okun has… Continue reading PatientsLikeMe Names Kim Goodwin and Sally Okun to New Web and Patient Advocacy Positions
PatientsLikeMe and Merck Establish Health Information Collaboration Focused on Psoriasis
Patient-Based Research Aims to Produce New Insights Into Most Common Autoimmune Disease in U.S. CAMBRIDGE, Mass. — Aug 13, 2012 — PatientsLikeMe announces it has entered into a collaboration with Merck, known as MSD outside the United States and Canada, to evaluate the impact of psoriasis on patients and to inform a novel approach to improving outcomes. “A… Continue reading PatientsLikeMe and Merck Establish Health Information Collaboration Focused on Psoriasis
Behind Every Piece of Data Is a Patient
(This post has been repurposed from an article written by PatientsLikeMe’s Ben Heywood for eyeforpharma’s Patient’s Week 2011.) Real-world, patient-reported data is becoming more important to you, the patient, as well as everyone in healthcare. One source of that data is patient registries. According to the US Department of Health & Human Services’ Agency for Healthcare Research… Continue reading Behind Every Piece of Data Is a Patient
The Patient Rules. A Discussion with the PatientsLikeMe Executives
We recently sat down with our executive team here at PatientsLikeMe in our first-ever roundtable-format podcast. In this PatientsLikeMeOnCallTM interview, we ask Co-founders Ben and Jamie Heywood, Chief Marketing Officer David S. Williams III, and R&D Director Paul Wicks PhD to discuss why our recent series themes are so important to the history and future… Continue reading The Patient Rules. A Discussion with the PatientsLikeMe Executives
PatientsLikeMe at Health 2.0: Paths to Insight
Last month, I spoke once again at the Health 2.0 conference in San Francisco. The video of my presentation is now online. Here’s a snapshot of what I covered in the 6-minute talk: As I note in my presentation, there are a lot of caveats to what I have up on the screen. We as… Continue reading PatientsLikeMe at Health 2.0: Paths to Insight
What Data Do We Sell? A Continued Discussion about “Data Scraping”
In response to the Wall Street Journal article published last week, we’ve had a lot of great discussions about the role of honesty and transparency. Transparency is about you – members of the PatientsLikeMe community – knowing how we make money and what we do with the data you’ve entrusted to each other and PatientsLikeMe.… Continue reading What Data Do We Sell? A Continued Discussion about “Data Scraping”