That’s right, you did it again! A big thank you to the PatientsLikeMe community for helping us reach our #24DaysofGiving goal for the second year in a row. Together, you donated 476,243 health data points! We’ll be making a $20,000 donation to Make-A-Wish® Massachusetts and Rhode Island to help fund life-affirming wishes for seriously ill… Continue reading You helped us reach our goal for #24DaysofGiving!
Tag: data for good
Your data doing good: Our collaboration with the FDA
During #24DaysofGiving this December, we’ve been highlighting all the good your health data is doing. For this one, we wanted to share more about how the data you donate is the centerpiece of a new collaboration between PatientsLikeMe and the Food and Drug Administration (FDA). Even after a new medication or treatment makes it through… Continue reading Your data doing good: Our collaboration with the FDA
At the #24DaysofGiving halfway point, you can help get us to our goal!
Just a couple of weeks ago we recognized #GivingTuesday, a day to celebrate generosity. But this idea of giving back isn’t just about one day – it’s bigger than that. We’re asking you to re-think what it means to give back by donating your health data this December for what we call #24DaysofGiving. And right… Continue reading At the #24DaysofGiving halfway point, you can help get us to our goal!
Your data doing good: A collaboration with Walgreens
During #24DaysofGiving this December, we’re highlighting all the good your health data is doing within – and well beyond – the PatientsLikeMe website. Here’s another great example. Did you know the side effect data you report on your PatientsLikeMe treatment evaluations is helping pharmacy customers understand how the medications they take may affect them, too?… Continue reading Your data doing good: A collaboration with Walgreens
Your data doing good: IPF treatment experiences
Every minute of every day, people are sharing their health data on PatientsLikeMe. Some of you are focused on tracking how you’re doing over time. Many want to make sure the next person diagnosed can learn from your experience. All are contributing to the greater good, because what you share helps researchers see what patients… Continue reading Your data doing good: IPF treatment experiences
Christel’s story
Last month, we introduced Christel, a member of your 2015-2016 Team of Advisors living with type 1 diabetes. Here she talks about the important role peer support has played in her journey. Here’s her story: You can see how much good data can do. During the month of December, we’re celebrating #24DaysofGiving. Any data… Continue reading Christel’s story
Gus’s story
Last month, we introduced Gus, a member of your 2015-2016 Team of Advisors living with ALS. Here he talks about his hope that the data he donates will help not just one person – but many. Here’s more of his story: You can see how much good data can do. During the month of… Continue reading Gus’s story
Your data doing good: The POEM Study
When you share your health data, we all learn Every minute of every day, people are sharing their health data on PatientsLikeMe. Some of you are focused on tracking how you’re doing over time. Many want to make sure the next person diagnosed can learn from your experience. All are contributing to the greater good,… Continue reading Your data doing good: The POEM Study
Allison’s story
Last month we introduced Allison, a member of your 2015-2016 Team of Advisors living with bipolar II. She recently opened up in a video about how sharing her data on the site helped her recognize when she might have an episode, and partner better with her doctor to prevent new episodes from happening. You can… Continue reading Allison’s story
PatientsLikeMe Encourages Sharing of Health Data for Good with 2nd Annual “24 Days of Giving”
The Gift of Health Data Can Help Others, and Advance Research CAMBRIDGE, MASS., December 1, 2015—On this #GivingTuesday, PatientsLikeMe is once again celebrating “the new tradition of generosity” by encouraging people to donate something unusual but vital: their health data. Starting today and continuing for #24DaysofGiving, PatientsLikeMe is asking anyone who is living with a… Continue reading PatientsLikeMe Encourages Sharing of Health Data for Good with 2nd Annual “24 Days of Giving”