Companies Partner With TED Fellow Dr. Max Little to Map the Severity of the Disease CAMBRIDGE, Mass.— February 5, 2014—PatientsLikeMe and the nonprofit research organization Sage Bionetworks announced today the launch of a new crowdsourced study to develop voice analysis tools that both researchers and people with Parkinson’s disease (PD) can use to track PD… Continue reading PatientsLikeMe and Sage Bionetworks launch open science study for people with Parkinson’s Disease
Tag: data
A New Year with Jamie Heywood
http://www.youtube.com/watch?v=cfUTG7YnijE It’s 2014, and it’s a significant year for PatientsLikeMe and our members. Later this year we’ll mark the 10th anniversary of our founding. As we reflect on where we’ve come from and where we’re going, there’s one thing that has never changed—our commitment to make sure your real-world experiences are a central part… Continue reading A New Year with Jamie Heywood
Information Wants to Be Free
(This post has been repurposed from an article written by PatientsLikeMe’s Paul Wicks for the scientific journal Clinical Investigation.) But when it comes to clinical trials, can we afford to let it be? “Information (or data) wants to be free” – so goes the mantra of hackers and data activists. In the past this meant… Continue reading Information Wants to Be Free
Giving Health Statistics a Good Name
Mark Twain popularized the notion that there are three kinds of lies: “lies, damned lies, and statistics.” But there’s a cure for bad statistics, and that cure is openness. When our study of the effects of lithium in ALS was published in Nature Biotechnology, we not only presented the usual background and analysis, but we… Continue reading Giving Health Statistics a Good Name
Turning Stories into Data…and Data into Knowledge
How do you make sense of all the information and stories that come with chronic illness? That’s exactly the challenge that the Patient Experience Team has taken on at PatientsLikeMe. Our goal is to create data visualizations that help you gain insight into your health, recognize emerging patterns and learn from one another’s experiences. Recently,… Continue reading Turning Stories into Data…and Data into Knowledge