“I get so angry when friends come over to visit, after I haven’t been able to get out of the house for a month, and tell me how good I look. Or the idiots who ask you how you got the handicapped parking tag when you look so healthy. People just don’t see how difficult… Continue reading Let’s make fibromyalgia visible today
Tag: fibromyalgia community
A Good Surprise: An Interview with Fibromyalgia Member DarkAuburn
Did you know we now have more than 30,000 members in our fibromyalgia community? In honor of this major milestone, we decided to interview DarkAuburn, who joined in 2009. She’s a three-star member, which means she’s earned our top star rating for sharing complete, in-depth information about her fibromyalgia symptoms, treatments, quality of life and… Continue reading A Good Surprise: An Interview with Fibromyalgia Member DarkAuburn
Fibromyalgia Awareness Day Is This Saturday
Sponsored by the National Fibromyalgia & Chronic Pain Association (NFMCPA), Fibromyalgia Awareness Day (Saturday, May 12th) is an annual event dedicated to raising awareness of this complex chronic pain disorder. Fibromyalgia (FM) affects an estimated 10 million people in the US, 75-90 percent of whom are women—but it can also occur in men and children. The… Continue reading Fibromyalgia Awareness Day Is This Saturday
Treat Us Right: Comparing Cymbalta and Lyrica in the Fibromyalgia Community
Since its launch in November 2008, our PatientsLikeMe Fibromyalgia Community has served as a place for more than 11,000 fibromyalgia patients to share with, find, and learn from others. Over the past 2 years, thousands of you have reported using Pfizer’s Lyrica® and Eli Lilly’s Cymbalta® as prescribed treatments for your fibromyalgia. PatientsLikeMe recently analyzed… Continue reading Treat Us Right: Comparing Cymbalta and Lyrica in the Fibromyalgia Community
One for All: Interview with Babsie (Fibromyalgia Community Welcomer)
To close out this week’s blog series (“One for All”), we bring you an interview with another noted “welcomer” from our Fibromyalgia community. Meet Babsie. A member of the 19,000-member community, she has commented on hundreds of patient profiles to date (which is highlighted in a graphic on Jeff Cole’s earlier blog here). Read… Continue reading One for All: Interview with Babsie (Fibromyalgia Community Welcomer)
One for All: The PatientsLikeMe “Welcome Wagon”
In yesterday’s post, we looked at some of the ways members of the PatientsLikeMe community are connecting with other patients and the value they are getting from it. Today, we’ll highlight how one person can make an enormous difference and inspire you with her ability to connect with others. One method of reaching out to… Continue reading One for All: The PatientsLikeMe “Welcome Wagon”
Share and Compare: From the mouths of patients
As we round out our “Share and Compare” week, here are a few quotes that some of our members have shared regarding the impact of being able to see where you fit in. You’ll read in the quotes how patients like you can find solace in the fact that there are others out there experiencing… Continue reading Share and Compare: From the mouths of patients