May is ALS awareness month and this year, we’re joining the ALS Therapy Development Institute to share how ALS makes us feel, #InThreeWords. Sad, determined, frustrating as hell – just a few of the words PatientsLikeMe staff chose. Want to get involved? Check out what PatientsLikeMe staff had to say, including a video from our… Continue reading How does ALS make you feel #InThreeWords?
Tag: jamie heywood
You helped us reach our goal for #24DaysofGiving!
That’s right, you did it again! A big thank you to the PatientsLikeMe community for helping us reach our #24DaysofGiving goal for the second year in a row. Together, you donated 476,243 health data points! We’ll be making a $20,000 donation to Make-A-Wish® Massachusetts and Rhode Island to help fund life-affirming wishes for seriously ill… Continue reading You helped us reach our goal for #24DaysofGiving!
Hacking our way to new and better treatments with integrated biology
When it comes to discovery and healthcare advancements, too many of us are more focused on the processes we use today rather than at a first principals level looking and what’s possible. We are a sector desperately in need of disruption to accelerate the generation of knowledge and lower the costs of developing new treatments… Continue reading Hacking our way to new and better treatments with integrated biology
The Theory of Everything
Between the Ice Bucket Challenge and movies like “You’re Not You” (about a classical pianist who is diagnosed with ALS), there has been a ton of awareness going on for ALS, with many efforts focused on the personal stories of people living with the neurological condition. And this month, ALS is being spotlighted again in… Continue reading The Theory of Everything
Jamie delivers keynote presentation at DIA 2014
Our co-founder, Jamie Heywood, recently traveled to San Diego to receive the Drug Information Association’s (DIA) 2014 President’s Award for Outstanding Achievement in World Health. With the award in his hand and speaking to everyone who was attending the event, he accepted it on behalf of the quarter million PatientsLikeMe members (this is for all… Continue reading Jamie delivers keynote presentation at DIA 2014
Throwback Thursday: Jamie talks about the future of medicine
It’s Throwback Thursday, so today we decided to share a talk our founder, Jamie Heywood, gave at the Government 2.0 Summit back in September 2009. He spoke about how we can better answer this question for patients: “Given my status, what is the best outcome I can achieve and how do I get there?” Watch what… Continue reading Throwback Thursday: Jamie talks about the future of medicine
PatientsLikeMe (mid-year) news report
We’re halfway through summer here at the PatientsLikeMe Boston office, and it’s been a busy 2014 so far – from the launch of the Data for Good campaign to new collaborations with One Mind and Genentech. In case you missed anything, here are some of the highlights: In the news Innovators in Health Data… Continue reading PatientsLikeMe (mid-year) news report
Genentech and PatientsLikeMe enter patient-centric research collaboration
Companies Sign Multi-Year Services and Data Subscription Agreement With Initial Focus on Oncology CAMBRIDGE, Mass. — April 7, 2014 — PatientsLikeMe announced today a five-year agreement with Genentech, a member of the Roche Group (SIX: RO, ROG; OTCQX: RHHBY), to explore use of PatientsLikeMe’s global online patient network to develop innovative ways of researching patients’ real-world… Continue reading Genentech and PatientsLikeMe enter patient-centric research collaboration
PatientsLikeMe launches “Data for Good” campaign to encourage health data sharing to advance medicine
Public Service Announcement-Style Video Calls Patients to “Donate Your Data for You. For Others. For Good” CAMBRIDGE, MA – March 10, 2014 – Today, PatientsLikeMe kicks off a new campaign promoting the value of sharing health information to advance research. In a series of public service announcement-style videos, the company highlights a movement called “data… Continue reading PatientsLikeMe launches “Data for Good” campaign to encourage health data sharing to advance medicine
A Live Online Event: The extended effects of sleep deprivation
Recently, PatientsLikeMe co-founder Jamie Heywood and the member community were featured on TEDMED’s blog, and we’re happy to share the post with you this morning. In case you didn’t know, TEDMED is a “multi-disciplinary community of innovators and leaders who share a common determination to create a better future in health and medicine.” (Check out their… Continue reading A Live Online Event: The extended effects of sleep deprivation