Why is Renal Disease so Prevalent Among Black Americans?

Renal disease is characterized by the progressive impairment of kidney function. Laetly, it has emerged as a critical public health concern in the United States. The Black population experiences a disproportionately high prevalence of renal disease, prompting a closer examination of the contributing factors. Renal disease encompasses a number of conditions that affect the kidneys.… Continue reading Why is Renal Disease so Prevalent Among Black Americans?

Drinks To Avoid For Those with CKD

Maintaining kidney health is crucial for overall well-being. Individuals with chronic kidney disease (CKD) often need to be particularly mindful of their diet and lifestyle choices. One aspect that plays a significant role in kidney health is knowing which drinks to avoid. Some drinks can be harmful to the kidneys, exacerbating the progression of CKD… Continue reading Drinks To Avoid For Those with CKD

Navigating GFR: A Guide to Kidney Health

The human body is an intricately designed machine, and within it, the kidneys play a crucial role in maintaining overall health. Among the various markers used to assess kidney function, the Glomerular Filtration Rate (GFR) stands out as a key indicator. While it seems complicated, it is one of the best ways to measure kidney… Continue reading Navigating GFR: A Guide to Kidney Health

Getting “Patients Included” right Part II: Planning a patient-centric event

You may remember Part I of this blog that focused on the experiences of two PatientsLikeMe members who attended the Kidney Health Initiative’s (KHI) workshop, “Understanding patients’ preferences: Stimulating medical device development in kidney disease,” back in August. KHI is a partnership between the U.S. Food and Drug Administration (FDA) and the American Society of… Continue reading Getting “Patients Included” right Part II: Planning a patient-centric event

Getting “Patients Included” right Part I: Two members attend a Kidney Health Initiative workshop

Back in August, the Kidney Health Initiative (KHI), a partnership between the U.S. Food and Drug Administration (FDA) and the American Society of Nephrology (ASN), held a workshop called “Understanding patients’ preferences: Stimulating medical device development in kidney disease.” But this was more than a workshop – it was an event centered around the idea… Continue reading Getting “Patients Included” right Part I: Two members attend a Kidney Health Initiative workshop

ORE Researcher Series: Tamara Kear is listening to kidney patients

Over the next few months, you’ll meet a few Open Research Exchange (ORE) researchers, and first up is Tamara Kear, PhD., R.N., CNS, CNN. She has over 20 years’ practice as a nurse caring for patients with kidney disease. Her research is focused on hypertension, one of the factors that can lead to a person… Continue reading ORE Researcher Series: Tamara Kear is listening to kidney patients

PatientsLikeMe launches “24 Days of Giving” to encourage sharing of health data for good

Napkin Notes Dad Garth Callaghan Joins Campaign Calling on People to Donate Health Data Starting on Giving Tuesday CAMBRIDGE, Mass. (November 17, 2014) – On December 2, PatientsLikeMe will launch a new campaign that will extend through the month and ask people to rethink their giving this year. PatientsLikeMe is calling on patients who are living with a chronic… Continue reading PatientsLikeMe launches “24 Days of Giving” to encourage sharing of health data for good

Give the gift of life on National Donor Day

Some of us might give our significant others and family members flowers and chocolates on Valentine’s Day, but did you know that February 14th is also National Donor Day? That’s right – in the spirit of love and giving, today is all about celebrating past donors and raising awareness for the five points of life:… Continue reading Give the gift of life on National Donor Day