“TransFatty Lives”: An interview with ALS filmmaker Patrick O’Brien

Meet Patrick O’Brien, a.k.a. “TransFatty,” whom we met through our friend and longtime PatientsLikeMe ALS member Steve Saling (Smooth S) after catching up with him earlier this year. Patrick is one of Steve’s housemates at the Steve Saling ALS Residence at the Chelsea Jewish Foundation’s Leonard Florence Center for Living and he’s also an award-winning filmmaker. Back… Continue reading “TransFatty Lives”: An interview with ALS filmmaker Patrick O’Brien

“Technology is the cure”: An update with member Steve Saling (SmoothS)

Recently, we paid a follow-up visit to ALS member Steve Saling (Smooth S) to see what he’s been up to and talk about future plans. When we last spoke with him in 2012, Steve was using his expertise as an architect and his interest in technology to spearhead the ALS Residence Initiative (ALSRI), starting with the Steve… Continue reading “Technology is the cure”: An update with member Steve Saling (SmoothS)

Help Patients Live Well with ALS

In February, we told you about veteran ALS member SmoothS and his efforts to bring to life the first and only fully automated, skilled service residence specializing in ALS. The Leonard Florence Center for Living opened in November 2010 in Chelsea, Massachusetts, and now SmoothS is working on bringing his groundbreaking concept to other cities.… Continue reading Help Patients Live Well with ALS