Lupus Awareness Month: Lupus Warrior Jeanette recaps her D.C. advocacy trip

In honor of Lupus Awareness Month, meet PatientsLikeMe member Jeanette, who recently traveled to the U.S. Capitol to advocate for lupus research funding. (Psst — here are some ideas on how to “Go Purple” this May and raise awareness of lupus!) “I try to help the world,” says Jeanette Alston-Watkins (JeanetteA6872). The full-time working mom of two… Continue reading Lupus Awareness Month: Lupus Warrior Jeanette recaps her D.C. advocacy trip

Putting on purple for lupus awareness

If you’ve got something purple to wear, today’s your day – the Lupus Foundation of America (LFA) is encouraging everyone to “Put on Purple” to help raise awareness for lupus. Lupus is an autoimmune disorder that affects millions of people worldwide, and the majority of these patients are women. Common symptoms include extreme fatigue, swollen… Continue reading Putting on purple for lupus awareness

Taking action for lupus awareness in May

If you think you look good in purple, you’re in luck – today is Put on Purple Day, sponsored by the Lupus Foundation of America. As part of the greater Lupus Awareness (Action!) Month in May, today is your chance to make lupus visible and learn about the effects of this chronic inflammatory condition. Lupus… Continue reading Taking action for lupus awareness in May

Join the Band: Raising Our Voices for Lupus Awareness

“I was diagnosed with lupus (SLE) at age 20 and had already lost about 60% of my kidney function. I had chemotherapy for nine months along with intense steroid therapy. I thankfully went into remission and have been since four months after my diagnosis. I still struggle with fatigue and kidney problems although I was… Continue reading Join the Band: Raising Our Voices for Lupus Awareness