What would someone who has lived with lupus (SLE) for decades tell her younger, newly diagnosed self? PatientsLikeMe member Hetlena (@TheLupusLiar), who was diagnosed with lupus in 1993, recently answered that question for us in the following personal essay reflecting on what she’s learned through the years… Tips For A Newly Diagnosed SLE Patient “This… Continue reading Lupus Diagnosis and Lupus Self Test: Member Hetlena’s Pointers For Her Old (Newbie with SLE) Self
Tag: lupus SLE
Parents with lupus (or any health condition) ‘don’t have to be perfect’ — take it from this mom
PatientsLikeMe member Jeanette Alston-Watkins (JeanetteA6872) was diagnosed with lupus in 2006, when her kids were 11 and 14. “My kids are my strength and they gave me energy and willpower,” she says in this Q&A about parenting with SLE. (Jeanette is on our 2018 Team of Advisors.) Can you share a bit about your diagnosis and… Continue reading Parents with lupus (or any health condition) ‘don’t have to be perfect’ — take it from this mom
Lupus Hair Loss and Folic Acid Hair Loss: Tips and Treatments
Are you losing some of your locks because of lupus? Hair loss isn’t usually listed among the core symptoms of lupus, but it does affect many people living with SLE (systemic lupus erythematosus) and discoid lupus. It may be caused by lupus itself, certain treatments for lupus, or other illnesses or health issues (such as thyroid… Continue reading Lupus Hair Loss and Folic Acid Hair Loss: Tips and Treatments
Zoodles! Let’s dish on lupus/food + swap recipes
If you’re living with lupus, have you found any particular foods that affect you and your condition — for better or worse? Member Jeanette (JeanetteA6872), a member of the 2018 Team of Advisors who’s living with systemic lupus erythematosus (SLE), shares which ingredients she tries to include or avoid in her diet, plus three of her favorite… Continue reading Zoodles! Let’s dish on lupus/food + swap recipes