Multiple Sclerosis is a disease in which the immune system eats away at the protective covering of nerves. As a result of this nerve damage, the communication signals between the brain and body are severely impacted. This damage can cause fatigue, vision loss, impaired coordination and severe pain. The summer months can prove difficult for… Continue reading Beat the Summer Heat With MS
Tag: Multiple Sclerosis
Conditions Commonly Mistaken for Multiple Sclerosis
Have you wondered why your vision got so blurry, or why you feel tired all the time? Maybe you’re having trouble remembering things, and your mind isn’t as sharp as it used to be. These symptoms can be scary, and it can be frustrating when there are no clear answers about what they may be.… Continue reading Conditions Commonly Mistaken for Multiple Sclerosis
Patient Choices: The Deciding Factors
In a recent series on patient choices, we’ve highlighted a lot of the decisions patients like you have to make on a daily basis. A few weeks ago, David S. Williams kicked off the series with a blog about the treatment and career decisions that patients like you, and his mother, have made. Kate Brigham… Continue reading Patient Choices: The Deciding Factors
Drug Safety: It’s About More Than Just Compliance
Engaging in social media presents a number of uncertainties to pharmaceutical companies. In a world where much of the medical dialog has moved online, these uncertainties have emerged due to absent or unclear guidelines from the Federal Drug Administration (FDA), privacy and regulatory concerns about engaging directly with patients, and the potential for significant consequences.… Continue reading Drug Safety: It’s About More Than Just Compliance
Raising MS Awareness: Meet Ramilla…
At PatientsLikeMe, we believe in getting to know the person, not just the “patient.” That’s why we interview members each month in our newsletter to find out more about how they approach life. In honor of MS Awareness Month, we are pleased to share with you our recent interview with Ramilla, a three-star member of… Continue reading Raising MS Awareness: Meet Ramilla…
A Year in Review: PatientsLikeMe in 2009
As 2009 comes to an end, we want to take this opportunity to thank all of our members, partners and general fans for another great year. Here’s a recap of some of the exciting happenings at PatientsLikeMe these past 12 months. Wishing you all a Happy New Year! Community Milestones This year, the 15+ disease… Continue reading A Year in Review: PatientsLikeMe in 2009
Patients showcase PatientsLikeMe to their local support group
Our members are very enthusiastic about the value generated by sharing their information. So much so that recently two of our members decided to don their hard-earned PatientsLikeMe t-shirts and share their experiences using PatientsLikeMe with their local MS support group. They recruited several new members at the meeting and gave more information about PatientsLikeMe… Continue reading Patients showcase PatientsLikeMe to their local support group
The “We Have MS Together!” video
Learning from each other can be addictive, and even fun at times. One of our more prolific (and outspoken and creative) MS members, Keeping On, decided to celebrate her 1000th post with a musical salute to some of the most humorous posts and posters in our MS community. So she got together with another witty… Continue reading The “We Have MS Together!” video
Community Report: The composition and experience of the Multiple Sclerosis community
Six months after its public launch, the MS PatientsLikeMe community includes over 1 in 200 MS patients in the U.S. and the rate of growth continues to escalate. To mark the occasion and experiment with new community tools, we put together the first PatientsLikeMe community report. In this report, we begin to paint a portrait… Continue reading Community Report: The composition and experience of the Multiple Sclerosis community
PatientsLikeMe T-Shirts
As the holiday spirit finally came upon us we thought we should do something nice for our members. There are thousands of them (and many more every day), so it isn’t reasonable to thank every one (we may look like Santa Claus, but we’re not, sadly). So we decided to thank the “stars” of the… Continue reading PatientsLikeMe T-Shirts