In our “Spotlighted Blogger” series, we’re talking with people who are sharing their personal health experiences to help raise awareness of disease and change healthcare for good. For our latest interview, we’re talking with Tricia who’s writing about her journey with multiple sclerosis (MS) on her blog Love My MS Life. Some of you may… Continue reading “I choose hope.” Interview with Multiple Sclerosis Blogger Tricia
Tag: multiple sclerosis
Marcia Hirst: Don’t Let Multiple Sclerosis Take the Joy Out of Your Life
“The benefit of sharing on PatientsLikeMe is the support. For me, it doesn’t matter what I’m going through, there are people there that understand. They’re not judgmental. They get it. They’re there too. I get lots of emotional moral support.” – Multiple Sclerosis Patient Marcia Back in June, we shared with you a video interview… Continue reading Marcia Hirst: Don’t Let Multiple Sclerosis Take the Joy Out of Your Life
Today’s Photo: Walking Warriors for MS
As we get deeper into summer, there are disease-related walk/run events happening almost every weekend. What they all share is an opportunity for patients, friends and family to come together in solidarity and raise money for research and patient services. For inspiration, please meet multiple sclerosis (MS) patient barneyhouse and her “Walking Warriors,” who took… Continue reading Today’s Photo: Walking Warriors for MS
Surviving Multiple Sclerosis (MS)
It’s Men’s Health Week, and we’re featuring the perspectives of – you guessed it – men. Following tiredoftired’s guest post about depression on Monday, we are pleased to present this poignant essay by longtime PatientsLikeMe member and mentor Rick N, who has lived with multiple sclerosis (MS) for 23 years. I am a 58-year-old man… Continue reading Surviving Multiple Sclerosis (MS)
Someone Like Me
We are pleased to present a guest post by PatientsLikeMe member Jasmine (Jazz1982), who was diagnosed with multiple sclerosis (MS) in her mid-twenties. Don’t miss this beautiful essay about the commonalities between all patients who have lost functionality – regardless of how different their conditions might seem. I recently met someone that happened to be just like… Continue reading Someone Like Me
Interview with Dr. Dee Kite, Author of “The Dumbest Things Smart People Say to Folks with MS” (Part II)
In Part I of our interview, we learned how Dee came to write The Dumbest Things Smart People Say to Folks with MS, how PatientsLikeMe’s MS Community was a critical part of her research and, most importantly, her “top three dumbest things” not to say. Today we find out more about Dee’s personal journey with… Continue reading Interview with Dr. Dee Kite, Author of “The Dumbest Things Smart People Say to Folks with MS” (Part II)
MS Awareness Week: Real-World Descriptions (and a Poem!) from Our MS Community
We kicked off MS Awareness Month by sharing some key facts we’ve learned from our MS community (26,000+ members and counting). Now, we are digging a bit deeper in honor of MS Awareness Week. You’ve already heard about common MS symptoms as well as frequent topics in our MS forum. But what it is really like to… Continue reading MS Awareness Week: Real-World Descriptions (and a Poem!) from Our MS Community
What Do You Know About Multiple Sclerosis?
March is National MS Education and Awareness Month (NMEAM), an initiative of the Multiple Sclerosis Foundation (MSF) to raise awareness for this chronic neurological disease affecting the brain, spinal cord and optic nerves. This year’s theme is “At Your Best with MS,” encouraging the more than 2.5 million people with MS worldwide to seek the… Continue reading What Do You Know About Multiple Sclerosis?
MS PATIENTS PERCEIVE COPAXONE EFFICACY AND TOLERABILITY AS COMPARABLE TO REBIF AND AVONEX
FOR IMMEDIATE RELEASE PatientsLikeMe Continues Report Series on Real-World Patient Experiences with Multiple Sclerosis Medications CAMBRIDGE, MA – November 3, 2011 – In the second report of a series on Multiple Sclerosis (MS) disease modifying therapies (DMTs), PatientsLikeMe reveals that MS patients perceive Copaxone as having comparable efficacy and tolerability profiles to the interferon therapies… Continue reading MS PATIENTS PERCEIVE COPAXONE EFFICACY AND TOLERABILITY AS COMPARABLE TO REBIF AND AVONEX
TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE
FOR IMMEDIATE RELEASE TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE PatientsLikeMe Releases First in Series of Reports on Real-World Patient Experiences with Top Multiple Sclerosis Drugs CAMBRIDGE, Mass. — September 22, 2011 — In the first report of a series on Multiple Sclerosis (MS) disease modifying therapies(DMTs), PatientsLikeMe reveals that nearly two-thirds (64%)… Continue reading TWO OUT OF THREE PATIENTS REPORT DISCONTINUING TYSABRI WITHOUT DOCTORS’ ADVICE