If you follow PatientsLikeMe on social media, you might have seen a few “Pop Quiz Tuesday” posts. Today, here’s a special pop quiz – what do fibromyalgia, myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) have in common? The answer is that they are classified as Chronic Immunological and Neurological Diseases (CINDs). And since 1992,… Continue reading Coming together for immunological and neurological health in May
Tag: neurological
PatientsLikeMe study monitors walking activity in people with MS
Cambridge, MA, April 15, 2015—PatientsLikeMe today announced results of a novel study conducted with Biogen that showed how people living with multiple sclerosis (MS) can use wearable activity tracking devices to collect and share their mobility data, which could potentially provide relevant information to their clinicians and to other MS… Continue reading PatientsLikeMe study monitors walking activity in people with MS
Seeing [MS]: The invisible symptoms – balance
Describing her loss of stability and balance is difficult for Carol Cooke. One moment, she might be walking, and the next, she’ll fall to the ground. As she says, “I just want to get up and keep going,” but that’s not possible due to the symptoms of her multiple sclerosis (MS). Listen to Carol speak… Continue reading Seeing [MS]: The invisible symptoms – balance
“ALS is not for sissies.” – PatientsLikeMe member SuperScout shares about her journey with ALS
That’s what SuperScout likes to tell people when explaining her personal motto. She was diagnosed in 2009, and in a recent interview, she explained how she takes her life one day, and sometimes one hour, at a time. In her interview, she broke down what goes on during a typical visit to her ALS clinic,… Continue reading “ALS is not for sissies.” – PatientsLikeMe member SuperScout shares about her journey with ALS
Myths vs. facts about multiple sclerosis
Stop! What do you know about multiple sclerosis (MS)? That’s the question we’re asking during MS Awareness Month. We’ve heard from many community members that people don’t always get what it’s like to live with MS, and that there’s wrong information out there. So as part of ongoing awareness efforts, we created shareable photos that… Continue reading Myths vs. facts about multiple sclerosis
March is Multiple Sclerosis Awareness Month
Multiple sclerosis (MS) affects more than 2.5 million people worldwide, and in the United States alone, about 200 new people are diagnosed each week. Those are just a couple of the many reasons why the Multiple Sclerosis Association of America (MSAA) recognizes March as Multiple Sclerosis Awareness Month. What more do we know about MS?… Continue reading March is Multiple Sclerosis Awareness Month
Seeing [MS]: The invisible symptoms – brain fog
Australian Jessica Anderson has been living with multiple sclerosis since she was 12 years old, and she says brain fog is the scariest symptom she experiences, especially not being able to gather and make sense of her own thoughts. During her worst moments, she can barely focus on a thought for more than 30 seconds.… Continue reading Seeing [MS]: The invisible symptoms – brain fog
“The human spirit is more resilient than we think” – PatientsLikeMe member mmsan66 shares her journey with ALS
PatientsLikeMe member mmsan66 was diagnosed with ALS back in 2008, but she’s been fortunate to experience an unusually slow progression, which currently affects only her legs. As a college professor, financial planner and ALS advocate, she raises awareness through her work with the Massachusetts Chapter of the ALS Association. She even finds time to visit… Continue reading “The human spirit is more resilient than we think” – PatientsLikeMe member mmsan66 shares her journey with ALS
Seeing [MS]: The invisible symptoms – fatigue
“It’s like I’m deflated. I don’t feel like doing anything.” That’s how Darcy McCann says he feels on most days. He’s a young Australian who was diagnosed with multiple sclerosis [MS] at the age of 10, and his most debilitating symptom is fatigue, which comes and goes as a result of his nerves being constantly… Continue reading Seeing [MS]: The invisible symptoms – fatigue
The Patient Voice- MS member Jackie shares her story
When Jackie was diagnosed with multiple sclerosis after a long, exhausting process, she struggled with a fear of the unknown and had no idea what she would be facing. But then she connected with the thousands of MS members on PatientsLikeMe. Jackie shared with the community about how she felt her current medication was… Continue reading The Patient Voice- MS member Jackie shares her story