Treating PTS: What members said in a recent study

June is National PTSD Awareness Month, so we’re shedding some light on what it’s really like to live with post-traumatic stress (PTS). At the end of last year, we teamed up with our partners at One Mind to better understand what it’s like for PTS patients to treat their condition. Nearly 700 members of PatientsLikeMe’s… Continue reading Treating PTS: What members said in a recent study

Brain Injury Awareness Month: Roxana’s story from our partners at One Mind

March is Brain Injury Awareness Month, so we’re sharing the story of Roxana Delgado, whose husband Victor is one of the 2.5 million Americans who survive traumatic brain injuries (TBIs) each year.1 In this video from our partners at One Mind, Roxana opens up about the challenges of caring for Victor after he suffered a… Continue reading Brain Injury Awareness Month: Roxana’s story from our partners at One Mind

From our partners at One Mind: Zack Lystedt’s football story

Accidents happen, anywhere to anyone. Whether it’s from playing soccer or football, snowboarding, riding a bike, competing in synchronized swimming, slipping on ice or falling off of a ladder. In sports, even with the best safety procedures in place, there are still accidents. That’s why our partners at One Mind have started the #TreatBrainsBetter campaign.… Continue reading From our partners at One Mind: Zack Lystedt’s football story

Joining the effort to find answers from brain diseases and injuries

In honor of Veterans Day, we wanted to share two stories from our partner, One Mind. First, the story of retired Colonel Gregory Gadson, who was wounded during his military service and was living with post-traumatic stress (PTS). PTS affects more than 7.7 million Americans each year. The second video shares the story of Roxana… Continue reading Joining the effort to find answers from brain diseases and injuries

You are not alone in brain injury

#NotAloneinBrainInjury. That’s the overarching theme of the 2015 Brain Injury Awareness Month, organized by the Brian Injury Association of America (BIAA). 2.5 million Americans survive a traumatic brain injury (TBI) each year, and and it’s time to raise awareness for the 5.3 million people currently living with a brain injury.1 In addition, Wednesday, March 18… Continue reading You are not alone in brain injury

Give veterans access to the care they need

By Peter Chiarelli, retired U.S. Army general & CEO of our partner One Mind As originally seen in the Washington Post Soldiers listen as U.S. Secretary of Defense Ash Carter (not pictured) holds a question-and-answer session with U.S.military personnel at Kandahar Airfield in Kandahar February 22, 2015. (Jonathan Ernst/Reuters)   The high-grossing film “American Sniper” was… Continue reading Give veterans access to the care they need

2014 recap – part II

2014 was full of new partnerships, research initiatives and PatientsLikeMe milestones (we just celebrated our 10th anniversary last week!), and in 2015 we’ll continue to put the patient first in everything we do. At PatientsLikeMe Everything we do starts with the community that shares their health data and experiences, which enables innovation and change in… Continue reading 2014 recap – part II

Raising awareness on Veteran’s Day

Right now, there are almost 22 million American veterans living in the United States, and every one of them has a story to tell. So today, we’re honoring their service by raising awareness for life after the military. Like many others who are living with chronic conditions, the injuries our military men and women sustain… Continue reading Raising awareness on Veteran’s Day

PatientsLikeMe (mid-year) news report

  We’re halfway through summer here at the PatientsLikeMe Boston office, and it’s been a busy 2014 so far – from the launch of the Data for Good campaign to new collaborations with One Mind and Genentech. In case you missed anything, here are some of the highlights: In the news Innovators in Health Data… Continue reading PatientsLikeMe (mid-year) news report

One Mind and PatientsLikeMe join forces to help people with post-traumatic stress and traumatic brain injury

Collaboration Will Uncover Real-World Experiences, Generate Patient Data That Improves Daily Living and Overall Understanding of Conditions SEATTLE, WA—June 12, 2014—One Mind and PatientsLikeMe announced a new multi-year collaboration to help the millions of people worldwide who are experiencing post-traumatic stress (PTS), traumatic brain injury (TBI), or both. The two organizations will work together to… Continue reading One Mind and PatientsLikeMe join forces to help people with post-traumatic stress and traumatic brain injury