Meet Alysia, a member of the 2018 PatientsLikeMe Team of Advisors who’s living with bipolar II disorder. Here’s what she had to say about parenting with a mental health condition, learning to adapt and how she “defies the odds.” When I was younger I wrote stories about my alter ego who had kids. I lived almost… Continue reading Parenting with bipolar II: Alysia’s story
Tag: openness about diagnosis
Pre-diagnosis limbo: “I knew something was wrong”
Before you were diagnosed with your condition, how long did you live in “limbo” with your symptoms and what was that like? Living with the unknown is a common part of the patient experience — PatientsLikeMe data shows that people with a wide range of health conditions live with their symptoms for several months or… Continue reading Pre-diagnosis limbo: “I knew something was wrong”
The OpenNotes movement: Your right to read your doctors’ notes
Have you ever seen your doctor’s clinical notes about you? (We’re not talking about your brief ‘after-visit summary,’ but the detailed notes the doctor or other healthcare provider writes later on.) PatientsLikeMe member Liz (thelizarmy) recently talked with us about OpenNotes, a movement to give patients easy access to their providers’ notes – like her 4,000+… Continue reading The OpenNotes movement: Your right to read your doctors’ notes