A new diagnosis of Friedreich’s ataxia (FA) can leave you with a long list of questions: What happens next? Which doctors do I need to see? What should I know about FA? What can I do to manage symptoms? And where can I find other people who understand what I’m going through? You do not… Continue reading Finding Your Footing After an FA Diagnosis
Tag: PatientsLikeMe
The Small Metabolic Health Changes Supporting Fertility Treatment
If you have had questions about fertility, or are curious what changes you can make to improve your fertility levels, look no further! Make no mistake, fertility is a complicated dance between human anatomy and chemistry. There are a lot of factors that can interfere with your ability to get pregnant. But fortunately, there are… Continue reading The Small Metabolic Health Changes Supporting Fertility Treatment
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Libby Frandsen
We have been fortunate enough to speak with a number of our members about their career journeys! It is a very tricky part of life to navigate, and in this piece Libby Frandsen speaks about her career evolution as she adapted to FA. Libby has worked with us on a number of articles and videos,… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Libby Frandsen
When You’re Running on Empty But Still Have to Be A Caregiver
Stop me if you have heard this before: caregiver fatigue (or burnout) is one of the most common things anyone in a position where they have to manage a loved one’s health will experience. Over 60% of people who are caregivers feel it. For some, this fatigue can be mild. Maybe you feel slightly more… Continue reading When You’re Running on Empty But Still Have to Be A Caregiver
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Hayden Howard
We are very excited to bring another featured interview of one of our members! Hayden Howard has helped us plan and build the FA community on PLM, and was directly responsible for contributing some content to the site: Hayden is also both a FARA Ambassador and has presented at NAF events! She is an incredibly… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Hayden Howard
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Kathleen Moore
We have been extraordinarily fortunate in finding people to join the PatientsLikeMe FA community who are willing to talk about some of the challenges they have faced. Chief among those – Kathleen! She has contributed a number of pieces already: And that’s just a few of them! Here, we wanted to cover a topic that… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Kathleen Moore
Wondering Whether Menopause Can Affect Brain Health Long Term?
As a natural biological process, every woman that hits middle age will go through menopause! In the United States, about 1.3 million women reach this change every year. With menopause come a wide range of symptoms and changes. Wildly fluctuating hormone levels can impact mood, sleep, your ability to concentrate, and so much more! Not… Continue reading Wondering Whether Menopause Can Affect Brain Health Long Term?
Is It Menopause, Stress, or Something More? Understanding Heart-Related Symptoms in Women
Have you found yourself waking up in the middle of the night? Maybe you find yourself sweating more than usual, or feel an uneasiness that just will not go away. What about general body aches and pains, or difficulty breathing? Or a racing heart? One of the unfortunate side effects of being human is having… Continue reading Is It Menopause, Stress, or Something More? Understanding Heart-Related Symptoms in Women
The Hidden Health Impact of Being in the Sandwich Generation
Many people are unaware of what the “sandwich generation” is. This term refers to adults who are simultaneously raising children and supporting their own aging parents. It speaks to the difficulty that someone in this situation faces – caught between having to care for two different groups that both require time, attention and energy. The… Continue reading The Hidden Health Impact of Being in the Sandwich Generation
How FARA Is Helping Move FA Research Forward and Why Collaboration Matters More Than Ever
How do researchers and scientists make progress on treatments and cures for rare diseases? The human body is incredibly complex, and understanding how certain conditions affect it takes time. For a condition like Friedreich’s Ataxia, that means years of careful research, data collection, comparison, and slow progress. One of the leaders in this charge is… Continue reading How FARA Is Helping Move FA Research Forward and Why Collaboration Matters More Than Ever