Stop me if you have heard this before: caregiver fatigue (or burnout) is one of the most common things anyone in a position where they have to manage a loved one’s health will experience. Over 60% of people who are caregivers feel it. For some, this fatigue can be mild. Maybe you feel slightly more… Continue reading When You’re Running on Empty But Still Have to Be A Caregiver
Tag: PatientsLikeMe
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Hayden Howard
We are very excited to bring another featured interview of one of our members! Hayden Howard has helped us plan and build the FA community on PLM, and was directly responsible for contributing some content to the site: Hayden is also both a FARA Ambassador and has presented at NAF events! She is an incredibly… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Hayden Howard
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Kathleen Moore
We have been extraordinarily fortunate in finding people to join the PatientsLikeMe FA community who are willing to talk about some of the challenges they have faced. Chief among those – Kathleen! She has contributed a number of pieces already: And that’s just a few of them! Here, we wanted to cover a topic that… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Kathleen Moore
Wondering Whether Menopause Can Affect Brain Health Long Term?
As a natural biological process, every woman that hits middle age will go through menopause! In the United States, about 1.3 million women reach this change every year. With menopause come a wide range of symptoms and changes. Wildly fluctuating hormone levels can impact mood, sleep, your ability to concentrate, and so much more! Not… Continue reading Wondering Whether Menopause Can Affect Brain Health Long Term?
Is It Menopause, Stress, or Something More? Understanding Heart-Related Symptoms in Women
Have you found yourself waking up in the middle of the night? Maybe you find yourself sweating more than usual, or feel an uneasiness that just will not go away. What about general body aches and pains, or difficulty breathing? Or a racing heart? One of the unfortunate side effects of being human is having… Continue reading Is It Menopause, Stress, or Something More? Understanding Heart-Related Symptoms in Women
The Hidden Health Impact of Being in the Sandwich Generation
Many people are unaware of what the “sandwich generation” is. This term refers to adults who are simultaneously raising children and supporting their own aging parents. It speaks to the difficulty that someone in this situation faces – caught between having to care for two different groups that both require time, attention and energy. The… Continue reading The Hidden Health Impact of Being in the Sandwich Generation
How FARA Is Helping Move FA Research Forward and Why Collaboration Matters More Than Ever
How do researchers and scientists make progress on treatments and cures for rare diseases? The human body is incredibly complex, and understanding how certain conditions affect it takes time. For a condition like Friedreich’s Ataxia, that means years of careful research, data collection, comparison, and slow progress. One of the leaders in this charge is… Continue reading How FARA Is Helping Move FA Research Forward and Why Collaboration Matters More Than Ever
Tracking Your FA Progression Without Letting It Take Over Your Life
You do not want to have a condition like Friedreich’s Ataxia take over every part of your life. However, tracking your progression, and understanding how your physical capabilities alongside your mental health change over time, is important! So how can you track your progress while still preserving time throughout your day to do things you… Continue reading Tracking Your FA Progression Without Letting It Take Over Your Life
The Walking Routine People Actually Stick With After a Heart Health Scare
A heart scare is a frightening event to go through. The concern about your health and your future is often too much for people to process all at once. While working with your doctor, you will likely need to address the healthy lifestyle changes you should make to reduce your chances of a future event.… Continue reading The Walking Routine People Actually Stick With After a Heart Health Scare
How Hormones, Pregnancy, and Menopause Can Affect Research Results
Our understanding of the human body and of medical conditions is driven by clinical studies. Studies that look at internal processes, how we react to treatments, and the potential side effects to be wary of. The first proper clinical trial was conducted all the way back in 1747! Since then, they have only improved and… Continue reading How Hormones, Pregnancy, and Menopause Can Affect Research Results