What changes when you or your loved one starts to rely on you more for help around the house? What happens in a relationship when the dynamic now has to accommodate being a caregiver? This is a hard change for anyone to go through, and for people with Friedreich’s Ataxia (FA) it is inevitable that… Continue reading When Your Partner Becomes Your Helper: Navigating Love and Caregiving With FA
Tag: PatientsLikeMe
‘No Manual For That’: Mental Health & FA
Note: This is a repost from Noah’s Blog. Please visit his fantastic site to read more about his journey! Throwback to a September night in Alabama. It’s hot and the stars are sparkling, but I wouldn’t have known. The roof had been the peak of my view all day. After hours of scrolling on my… Continue reading ‘No Manual For That’: Mental Health & FA
Traveling Overseas For the First Time Since Being Disabled
In this blog, Libby Frandsen shares her experience going overseas for the first time since become a wheelchair user! As someone with Friedreich’s Ataxia, there is a great deal of planning and many extra steps that go into travel. If you are interested in anything else Libby has shared about her life, be sure to… Continue reading Traveling Overseas For the First Time Since Being Disabled
How I Learned to Do Things Differently With FA
In this Q&A with PLM member and FA Ambassador Kelly Gregory, she shares how she has adapted to living with Friedreich’s Ataxia. As someone who heavily prioritizes movement and exercise in her life, FA has presented Kelly with a number of challenges. But she is no stranger to obstacles! If you are interested in any… Continue reading How I Learned to Do Things Differently With FA
My Fall FA Routine: Why Swimming Should Be Your Go-To
Exercise is an important piece of managing a condition like Friedreich’s Ataxia (FA). Regardless of your progression, staying active can and will increase your strength and flexibility, help with balance, coordination, and heart health! But what exercises are best to try? They are going to vary person to person. What works for some might not… Continue reading My Fall FA Routine: Why Swimming Should Be Your Go-To
The Human Brain is Two Separate Organs – New Research
A groundbreaking study done by Stanford Medicine has found that the brain is two separate organs adjacent to one another. Going against the prevailing belief that the brain is a single organ, this finding could change the way we treat diseases that affect the brain like ALS and Multiple Sclerosis (MS). But what exactly did… Continue reading The Human Brain is Two Separate Organs – New Research
Finding Your Footing After an FA Diagnosis
A new diagnosis of Friedreich’s ataxia (FA) can leave you with a long list of questions: What happens next? Which doctors do I need to see? What should I know about FA? What can I do to manage symptoms? And where can I find other people who understand what I’m going through? You do not… Continue reading Finding Your Footing After an FA Diagnosis
The Small Metabolic Health Changes Supporting Fertility Treatment
If you have had questions about fertility, or are curious what changes you can make to improve your fertility levels, look no further! Make no mistake, fertility is a complicated dance between human anatomy and chemistry. There are a lot of factors that can interfere with your ability to get pregnant. But fortunately, there are… Continue reading The Small Metabolic Health Changes Supporting Fertility Treatment
Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Libby Frandsen
We have been fortunate enough to speak with a number of our members about their career journeys! It is a very tricky part of life to navigate, and in this piece Libby Frandsen speaks about her career evolution as she adapted to FA. Libby has worked with us on a number of articles and videos,… Continue reading Freelance, Flexible, Remote: Real Work Paths People Use When Traditional Jobs Change – Libby Frandsen
When You’re Running on Empty But Still Have to Be A Caregiver
Stop me if you have heard this before: caregiver fatigue (or burnout) is one of the most common things anyone in a position where they have to manage a loved one’s health will experience. Over 60% of people who are caregivers feel it. For some, this fatigue can be mild. Maybe you feel slightly more… Continue reading When You’re Running on Empty But Still Have to Be A Caregiver