It’s ALS Awareness Month! Did you know there are more than 4,500 patients with ALS (PALS) in PatientsLikeMe’s flagship community? We’ll be updating you all month on what is being learned by and from our PALS, so stay tuned. To kick us off, here is an interview with one of our long-time, three-star members –… Continue reading An Interview with DannyD to Kick-Off ALS Awareness Month
Tag: PatientsLikeMe
PatientsLikeMeInMotion at 2010 Parkinson’s Unity Walk
Last weekend, we headed to New York City in great anticipation of the 2010 Parkinson’s Unity Walk held each year in Central Park. We were excited once again to meet members of Team PatientsLikeMe, a group of patients who travel from across the country to meet one another and work tirelessly to raise money each… Continue reading PatientsLikeMeInMotion at 2010 Parkinson’s Unity Walk
Tell the World: Daddytom Shares His Experiences with Parkinson’s
To continue our series in honor of Parkinson’s Awareness Month, here’s another interview to bring you “the patient voice.” We recently featured this interview with three-star member daddytom in the April edition of our Parkinson’s Community newsletter. Read on to learn what he has to say about finding courage, recognizing mentors and raising awareness about… Continue reading Tell the World: Daddytom Shares His Experiences with Parkinson’s
Tell The World: Parkinson’s Patients are “In Motion”
The PatientsLikeMeInMotion sponsorship program has been a tremendous success so far this year! Sponsorship requests from members participating in nonprofit events are flying in by the second from all over the country. It’s exciting to see our members are as active offline as they are online about raising awareness of their condition. The PatientsLikeMeInMotion program… Continue reading Tell The World: Parkinson’s Patients are “In Motion”
Tell the World: Parkinson’s Patients Unite Online and Off
At PatientsLikeMe, thousands of patients are uniting online to share health data, find patients like them, and to learn from one another. Since this is Parkinson’s Awareness Month, we wanted to highlight an off-line event that also represents unity – aptly named the Unity Walk. The annual event, which takes place next weekend in New… Continue reading Tell the World: Parkinson’s Patients Unite Online and Off
PatientsLikeMe – Out & About and OnCall
The PatientsLikeMe team has been traveling around the globe recently talking about the power of real-world patient data in changing healthcare. You may have heard about our executives at industry conferences, government hearings, or even on TV. Highlights below. Last month, PatientsLikeMe Co-founder and President Ben Heywood was on Fox Business News talking about how… Continue reading PatientsLikeMe – Out & About and OnCall
Capture and Share Your Transplant Journey
Following up on last week’s launch of the PatientsLikeMe Transplants Community, we present you with the next in our podcast series – PatientsLikeMe OnCallTM: Transplant Community Walk-Through. Podcast host, Aaron Fleishman, interviews Product Manager Maureen Oakes about new and upgraded functionality rolled out with the launch of this transplants community. Topics covered in this podcast… Continue reading Capture and Share Your Transplant Journey
It’s World Kidney Day! Share on…
It’s World Kidney Day 2010 – a global health awareness campaign focused on the importance of kidneys and prevention of kidney disease. According to www.world kidneyday.org, “Many people are currently not aware that their kidneys are damaged and they might find out too late. Dialysis and transplantation can be prevented if kidney diseases are detected… Continue reading It’s World Kidney Day! Share on…
PatientsLikeMe and Novartis Unite to Launch Community for Organ Transplant Recipients
Recognized by Fast Company as two of the 50 Most Innovative Companies in the World, PatientsLikeMe and Novartis have united to launch a new community for organ transplant recipients (including kidney, lung, heart and liver). In the news release announcement, PatientsLikeMe President Ben Heywood and Novartis CEO Joe Jimenez discuss what impact this community could… Continue reading PatientsLikeMe and Novartis Unite to Launch Community for Organ Transplant Recipients
Where are the Cures? An interview with Myelin Repair Foundation
PatientsLikeMe partner, Myelin Repair Foundation (MRF), is a nonprofit organization devoted to reducing the time it takes to discover and develop treatments for multiple sclerosis (MS) patients. Recently, the MRF launched a campaign called “Where are the Cures?” – a site dedicated to a greater understanding of the barriers slowing the discovery and development of… Continue reading Where are the Cures? An interview with Myelin Repair Foundation