Last month, PatientsLikeMe’s Sally Okun, VP of Policy & Ethics, was invited to the White House to attend a small executive discussion. The topic? Making the electronic health record (EHRs) experience more patient-centric and accessible, and the importance of “healthcare data interoperability” — the idea that different electronic health record systems should work together in… Continue reading PatientsLikeMe at the White House: A new initiative to give patients more control of their health data
Tag: personal health data
Know Thyself. Quantify Thyself.
Are you someone who likes to track things about yourself? For example, do you keep an exercise log of how many reps you did – or a food journal that details what (and how much) you consumed? Do you monitor your health and disease progression at PatientsLikeMe? If so, you might not know it, but… Continue reading Know Thyself. Quantify Thyself.
A Day in the Life of PatientsLikeMe Community Manager Jeanette DeVita
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features employees from different departments. So far, we’ve interviewed User Experience Engineer Cris Necochea, Research Assistant Shivani Bhargava, Office Manager Alison Dutton, Research Scientist Timothy Vaughan, Biz Dev’er Arianne Graham and Product… Continue reading A Day in the Life of PatientsLikeMe Community Manager Jeanette DeVita
What can happen when patients have access to one another’s data
There is growing interest in and demand for access to personal health information and tools to review and discuss this information. But why? What do patients get from reviewing health information? More research is needed to know the answer.To examine this question and understand what value users get from one another’s information, Michael Massagli and… Continue reading What can happen when patients have access to one another’s data