Coping with Grief and Loss 

Many people will tell you that when you experience a tragedy there is no right or wrong way to grieve. But understanding what grief is and how it works may ease the pain of the process. Emotional responses to loss can often be overwhelming or debilitating, and coping with grief is difficult. A sudden death… Continue reading Coping with Grief and Loss 

Leaving a Legacy of Data at PatientsLikeMe

Recently, our ALS community mourned the loss of Persevering, a highly proactive three-star member who was known for his unfailing efforts to support fellow patients, record and share data, report website problems and recruit ALS clinical trial participants.  Offline, he was also a tireless advocate for ALS awareness and research, attending conferences and lobbying on… Continue reading Leaving a Legacy of Data at PatientsLikeMe