Chemotherapy is one of the most common treatments for lung cancer, so the community on PatientsLikeMe is chatting about what’s helpful to pack in a bag for chemo appointments (join PatientsLikeMe to take part in this lung cancer forum discussion). Everyone’s experiences, side effects and preferences are different, but here are some items that people who’ve had chemotherapy say… Continue reading What’s in your “chemo bag”? Gearing up for lung cancer treatment
Tag: treatment
Cannabis for PD treatment? Member Ian says it’s something to shout about
Member Ian (Selfbuilder) blogs and vlogs about using cannabis products to treat his Parkinson’s disease symptoms, even though marijuana (including medical marijuana) is illegal and stigmatized where he lives in the U.K. Why is he speaking up? “I know that I would not be here now if it wasn’t for the relief provided by my… Continue reading Cannabis for PD treatment? Member Ian says it’s something to shout about
Living with depression? Grab your mat: 5-minute yoga video with Jamie from PatientsLikeMe
Studies have shown that practicing yoga can have positive effects on people with depression. So we tapped Jamie – a PatientsLikeMe research assistant who is also a certified yoga instructor – to show us some poses with mental health in mind. She put together a 5-minute, beginner-level flow that you can try at home. (As… Continue reading Living with depression? Grab your mat: 5-minute yoga video with Jamie from PatientsLikeMe
Let’s make fibromyalgia visible today
“I get so angry when friends come over to visit, after I haven’t been able to get out of the house for a month, and tell me how good I look. Or the idiots who ask you how you got the handicapped parking tag when you look so healthy. People just don’t see how difficult… Continue reading Let’s make fibromyalgia visible today
Treating PTS: What members said in a recent study
June is National PTSD Awareness Month, so we’re shedding some light on what it’s really like to live with post-traumatic stress (PTS). At the end of last year, we teamed up with our partners at One Mind to better understand what it’s like for PTS patients to treat their condition. Nearly 700 members of PatientsLikeMe’s… Continue reading Treating PTS: What members said in a recent study
“Not beyond us” – Recognizing World Cancer Day
The Union for International Cancer Control (UICC) has organized today, February 4th, as World Cancer Day. This year’s theme: “Not beyond us.” It’s about highlighting that solutions to cancer are within our reach. Awareness is not beyond us. Prevention is not beyond us. And a cure is not beyond us. The UICC is encouraging everyone… Continue reading “Not beyond us” – Recognizing World Cancer Day
PatientsLikeMe and Cancer Treatment Centers of America Eastern team up to support survivors
Online Network Connects Patients, Offers Valuable Information and Tools CAMBRIDGE, Mass.—October 8, 2014—PatientsLikeMe and Cancer Treatment Centers of America (CTCA) at Eastern Regional Medical Center (Eastern) have joined forces to help ease patients’ transitions from cancer treatment to survivorship. The collaborative effort is designed to give patients undergoing or completing treatment direct access to a… Continue reading PatientsLikeMe and Cancer Treatment Centers of America Eastern team up to support survivors
It’s the Season for Seasonal Affective Disorder
Now that daylight savings time has ended, the days are shorter, and before you know it, it’s nightfall. Has this affected your mood? Seasonal affective disorder (SAD), also known as seasonal depression, is a condition marked by a period of depression that occurs during the same season year after year. In most cases, that season… Continue reading It’s the Season for Seasonal Affective Disorder
Structuring and Presenting the Patients’ Perspective at AMIA
PatientsLikeMe members share health data on the site adding their own individual-level health experience to a repository of structured outcome data. The result? An unprecedented data set that informs medical conversation not only within the patient community but also with the larger scientific one. Earlier this fall, the venue for this conversation was the annual… Continue reading Structuring and Presenting the Patients’ Perspective at AMIA