Tag: UCB

Your data doing good: The POEM Study

When you share your health data, we all learn Every minute of every day, people are sharing their health data on PatientsLikeMe. Some of you are focused on tracking how you’re doing over time. Many want to make sure the next person diagnosed can learn from your experience. All are contributing to the greater good,… Continue reading Your data doing good: The POEM Study

New Efforts Underway to Improve Care for Veterans

With financial support from UCB, the Department of Veterans Affairs and PatientsLikeMe will study patient-reported outcomes. CAMBRIDGE, Mass. — Jan 22, 2013 — Today, the U.S. Department of Veterans Affairs’ Epilepsy Centers of Excellence (ECoE), biopharmaceutical company UCB and health data-sharing website PatientsLikeMe announce a new study to better understand what factors improve health outcomes for veterans with… Continue reading New Efforts Underway to Improve Care for Veterans

Open Access for All: PatientsLikeMe’s Epilepsy Survey Results Now Published

Last April, we had the honor of presenting the results of our epilepsy survey at the American Academy of Neurology (AAN) Annual Meeting.   In some of the key takeaways, we shared that 55% of respondents consider PatientsLikeMe “moderately or very” helpful in learning about the type of seizures they experience. 45% found it useful for… Continue reading Open Access for All: PatientsLikeMe’s Epilepsy Survey Results Now Published

News Release: Survey Reveals PatientsLikeMe® Helps People With Epilepsy Improve Seizure Understanding and Medication Adherence

In today’s news… ******** BRUSSELS, BELGIUM and CAMBRIDGE, MA–(Marketwire – April 12, 2011) – In a survey amongst people with epilepsy in the U.S. who have joined PatientsLikeMe®, the leading health data-sharing website for patients, respondents indicate that better seizure understanding and improved adherence are key benefits of using the site. The majority of respondents… Continue reading News Release: Survey Reveals PatientsLikeMe® Helps People With Epilepsy Improve Seizure Understanding and Medication Adherence

Share and Compare: A PatientsLikeMe Year in Review (Part II – R&D)

The PatientsLikeMe research and development (R&D) team is excited about what we can all share and learn in 2011.  Here’s a look back at some of what patients like you shared with us, and what we then shared with the world, in 2010. The R&D team published and presented some unprecedented insights based on what… Continue reading Share and Compare: A PatientsLikeMe Year in Review (Part II – R&D)

PatientsLikeMe at the American Epilepsy Society Meeting 2010

Earlier this month, PatientsLikeMe was fortunate enough to attend the 64th Annual Meeting of the American Epilepsy Society in San Antonio, Texas. We were there to spread the word about PatientsLikeMe to some 4,000 attendees including epileptologists (physicians specializing in the treatment of epilepsy), neurologists, nurses, and researchers. We had a great spot on the… Continue reading PatientsLikeMe at the American Epilepsy Society Meeting 2010

Share and Compare: Be a PRO! Understand Your Experiences in Context

This week on our blog, we’ve been highlighting how patients like you are putting their experiences in context.  With the launch of InstantMe and some of the design updates you read about, you can see we’re listening to your call for more functionality that lets you understand how your condition affects the whole you. Patient… Continue reading Share and Compare: Be a PRO! Understand Your Experiences in Context

Video: Introducing the New Epilepsy Community

In honor of the launch of the new PatientsLikeMe Epilepsy community this week, we have created a video highlighting how patients are coming together to share their experiences with epilepsy and learn from others. It’s now available on our PatientsLikeMe Epilepsy YouTube page. This short video includes quotes from some of our members about what… Continue reading Video: Introducing the New Epilepsy Community

PatientsLikeMe and UCB Open Free Online Community for People With Epilepsy in the U.S.

Pharmaceutical, Social Media Leaders Examine Real-World Impact of Epilepsy CAMBRIDGE, MA and ATLANTA, GA — (Marketwire – January 26, 2010) —  Today, PatientsLikeMe, the leading online community for people with life-changing conditions, and biopharmaceutical company UCB open the doors to a free online community for people living with epilepsy in the U.S. Focused on learning… Continue reading PatientsLikeMe and UCB Open Free Online Community for People With Epilepsy in the U.S.