PatientsLikeMe is dedicated to building a platform for the open sharing of personal health data. So far, our community of patients have shared over 600,000 outcome surveys, 300,000 treatment histories, and 2.3 million symptom reports. We believe this enormous collection of health data will dramatically improve how patients manage their conditions. But there are more… Continue reading One for All: The Connected Community of PatientsLikeMe
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Share and Compare: Be a PRO! Understand Your Experiences in Context
This week on our blog, we’ve been highlighting how patients like you are putting their experiences in context. With the launch of InstantMe and some of the design updates you read about, you can see we’re listening to your call for more functionality that lets you understand how your condition affects the whole you. Patient… Continue reading Share and Compare: Be a PRO! Understand Your Experiences in Context
Share and Compare: From the mouths of patients
As we round out our “Share and Compare” week, here are a few quotes that some of our members have shared regarding the impact of being able to see where you fit in. You’ll read in the quotes how patients like you can find solace in the fact that there are others out there experiencing… Continue reading Share and Compare: From the mouths of patients
Share and Compare Your Health Experience
“I want to know if what I’m going through is normal for a patient like me.” This is a sentiment we’ve heard from so many of you throughout our communities. This week, we’re focusing our blog on some of the ways we’re trying to help you put your experiences in context. It’s a concept we… Continue reading Share and Compare Your Health Experience
World AIDS Day 2010: Did you know…
Did you know today is World AIDS Day? Thanks to the many different organizations (including those like AIDS.gov) recognizing the day and raising awareness about HIV and AIDS. Now a few years old, the PatientsLikeMe HIV community currently has more than 2,800 people with HIV sharing their health information to help others learn from their… Continue reading World AIDS Day 2010: Did you know…
Share and Compare: How are you feeling? Find out with InstantMe!
Here at PatientsLikeMe we strive to give you the tools and functionalities you want and need to gain insights into your conditions, including putting your experiences in context. Today, we’re introducing a new tool in all of our communities called “InstantMe.” Want to chart how you’re feeling day in and day out? Now you can.… Continue reading Share and Compare: How are you feeling? Find out with InstantMe!
“To Measure Is To Know”
Always check primary sources…. This was the title of a brief message sent to me from Paul Wicks, our head of research here at PatientsLikeMe. He was referring to a quote I have used as my email signature for the last few years; he had discovered I had wrongly attributed it to Archimedes. “To measure… Continue reading “To Measure Is To Know”
Epilepsy Awareness Month: The Alternative Way
It’s Epilepsy Awareness Month, so let’s continue with our series of blogs about our Epilepsy Community members’ experiences with this disease. Below is an interview with member “akamine2525.” Earlier this year, she gave the following interview in our monthly newsletter. Want to know what keeps akamine2525 motivated, who she admires and how epilepsy has affected… Continue reading Epilepsy Awareness Month: The Alternative Way
PatientsLikeMe at Health 2.0: Paths to Insight
Last month, I spoke once again at the Health 2.0 conference in San Francisco. The video of my presentation is now online. Here’s a snapshot of what I covered in the 6-minute talk: As I note in my presentation, there are a lot of caveats to what I have up on the screen. We as… Continue reading PatientsLikeMe at Health 2.0: Paths to Insight
Epilepsy Awareness Month: What do you know about Epilepsy?
Launched earlier this year, the PatientsLikeMe Epilepsy community now has more than 3,000 patients. In honor of Epilepsy Awareness Month, here’s a snapshot of what patients like you are sharing and learning about in this community. Did you know… How are our members treating their condition? What are their major symptoms? What are they talking… Continue reading Epilepsy Awareness Month: What do you know about Epilepsy?