Are you a caregiver or do you know someone who cares for a loved one? For National Family Caregivers Month, we caught up with Cathy (Catrin), who became a caregiver for her husband after he was diagnosed with bulbar onset ALS in January of 2015. As she learns to manage the dual roles of wife… Continue reading “Hope makes us strong.” Cathy opens up for National Family Caregivers Month
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Lung Cancer Awareness Month: An interview with member Clare
November is Lung Cancer Awareness Month, and to share some insight into what it’s like to live with this condition, we talked to member Clare (Riverdale). When she was diagnosed with non small-cell lung cancer, her husband was already living with prostate cancer. While supporting each other through chemotherapy and radiation, the couple has made… Continue reading Lung Cancer Awareness Month: An interview with member Clare
Patient Advocacy: An interview with artist and activist Regina Holliday
Regina Holliday wears many hats. She’s an artist, activist, speaker and author, and she’s painted hundreds of patient stories on the backs of jackets in an ongoing art project called The Walking Gallery. Through her art, Regina promotes better care, treatment and transparency in healthcare. She’s been an advocate of PatientsLikeMe for quite some time (two… Continue reading Patient Advocacy: An interview with artist and activist Regina Holliday
Food for thought: What GERD means for digging in on Thanksgiving
It’s GERD Awareness Week — and it’s also Thanksgiving week. To a lot of folks, this means a holiday feast with all the trimmings: turkey, stuffing, mashed potatoes, pies and other rich foods. But for people living with gastroesophageal reflux disease — over 4,650 here at PatientsLikeMe — it might mean something different. The most common symptom… Continue reading Food for thought: What GERD means for digging in on Thanksgiving
PatientsLikeMe Adds Patient Reviews of Medications to Walgreens.com
Real-World Reports on Use, Effectiveness and Alternative Medications Now Available for Thousands of Brand Name and Generic Drugs CAMBRIDGE, MA., November 17, 2016—PatientsLikeMe has expanded the scope of patient-reported information it offers through Walgreens.com to help more people better understand how certain prescription medications may affect them. The new information, which is updated daily and… Continue reading PatientsLikeMe Adds Patient Reviews of Medications to Walgreens.com
In her own words: Letitia shares about her new brain for Epilepsy Awareness Month
Have you met Letitia (Letitia81) from the epilepsy community? Four years ago, her research on PatientsLikeMe led her to the brain surgery that forever changed her life — she’s now seizure-free after three decades. Things are much different now for Letitia, and she’s written all about her before and after in a recent article for… Continue reading In her own words: Letitia shares about her new brain for Epilepsy Awareness Month
Barry shares his story for National Diabetes Month
November is National Diabetes Month, and this year, we caught up with Barry (bjf2000): history lover, grandfather and member of the diabetes community. Below, see what Barry says about his journey to diagnosis (“a flipping mess”), what it’s like to manage multiple conditions and becoming his own advocate. Tell us a little about yourself. What… Continue reading Barry shares his story for National Diabetes Month
PatientsLikeMe Welcomes Next Patient Team of Advisors
CAMBRIDGE, Mass, November 14, 2016—PatientsLikeMe has named 11 members to its patients-only 2016–2017 Team of Advisors, which this year will focus on elevating the patient voice. Team members will share their stories, participate in community initiatives, and give real world perspectives to our industry and research partners. “Each year, our Team of Advisors has proven… Continue reading PatientsLikeMe Welcomes Next Patient Team of Advisors
“I’m still fighting for a good cause, just on a different battlefield” — Member Shanon opens up for Veterans Day
PTS member Shanon (sgreer) is a veteran of the US Army, and this Veterans Day, we’re sharing his story to honor those who’ve served and spread more awareness and understanding for the millions who are living with chronic conditions. Shanon is a police officer in Giddings, TX. When we caught up with him, he shared… Continue reading “I’m still fighting for a good cause, just on a different battlefield” — Member Shanon opens up for Veterans Day
Patients at work: Member Jenny launches online craft shop on Etsy
A few weeks ago, we kicked off a new blog series about patients who have started (or are working on launching) their own businesses. We’ll be featuring some enterprising members and learning more about how they manage their health and their career goals at the same time. Today, we’d like introduce Jenny, (jhound), a… Continue reading Patients at work: Member Jenny launches online craft shop on Etsy