“We have become 24/7 creatures in a 24/7 society”: an interview on sleep with Fred W. Turek, Ph.D.

Dr. Fred Turek is Director of the Center for Sleep and Circadian Biology at Northwestern University. He holds a BS in biology from Michigan State University and a PhD in biology from Stanford University. Dr.Turek’s current research focuses on the genetics of the circadian clock system, the effects of advanced age on behavioral and endocrine… Continue reading “We have become 24/7 creatures in a 24/7 society”: an interview on sleep with Fred W. Turek, Ph.D.

“In my own words” – PatientsLikeMe member Edward shares about living with schizoaffective disorder

Meet Edward, a member of the PatientsLikeMe mental health community. He’s been living with schizoaffective disorder since the late 1970s, and over the past 35 years, he’s experienced many symptoms, everything from paranoia and euphoria to insomnia and deep depression. Below, he uses his own words to take you on a journey through his life… Continue reading “In my own words” – PatientsLikeMe member Edward shares about living with schizoaffective disorder

Schizophrenia: Living well and working towards a cure

Today marks the start of Schizophrenia Awareness Week, and what better way to begin than with the story of an inspiring woman who is living with schizophrenia and advocating for better treatments. Dr. Elyn Saks was diagnosed with schizophrenia as a college student. At first she struggled with her diagnosis, and it took a while… Continue reading Schizophrenia: Living well and working towards a cure

PatientsLikeMe Appoints Jason Johnson Executive Vice President and Head of R&D

CAMBRIDGE, MA, May 18, 2015—PatientsLikeMe today announced it has appointed Jason Johnson, PhD, as Executive Vice President and head of research and development (R&D). Johnson leads the company’s research, data science, and informatics teams, which focus on analyzing and merging patient-reported and other data types to develop models of disease progression and generate new insights… Continue reading PatientsLikeMe Appoints Jason Johnson Executive Vice President and Head of R&D

Putting on purple for lupus awareness

If you’ve got something purple to wear, today’s your day – the Lupus Foundation of America (LFA) is encouraging everyone to “Put on Purple” to help raise awareness for lupus. Lupus is an autoimmune disorder that affects millions of people worldwide, and the majority of these patients are women. Common symptoms include extreme fatigue, swollen… Continue reading Putting on purple for lupus awareness

Getting to know our Team of Advisors – Amy

We’re been introducing the PatientsLikeMe Team of Advisors on the blog over the past 6 months, and today, we’re happy to announce Amy, a member living with a rare genetic disease called Fabry. Below, she shares about the importance of being aware of patients as individuals, and how she’s learned to live (and thrive!) with… Continue reading Getting to know our Team of Advisors – Amy

Coming together for immunological and neurological health in May

If you follow PatientsLikeMe on social media, you might have seen a few “Pop Quiz Tuesday” posts. Today, here’s a special pop quiz – what do fibromyalgia, myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) have in common? The answer is that they are classified as Chronic Immunological and Neurological Diseases (CINDs). And since 1992,… Continue reading Coming together for immunological and neurological health in May

PatientsLikeMeInMotion™ 2015: Celebrating 7 years of PatientsLikeMe members giving back to their communities and raising awareness

For those of you who don’t know, our PatientsLikeMeInMotion™ program has been running since 2009—how time flies! Join us in celebrating our 7th year with a recap of 2014, our biggest year so far! Last year, we had the honor of supporting 2192 members across 32 states that participated in a range of events and… Continue reading PatientsLikeMeInMotion™ 2015: Celebrating 7 years of PatientsLikeMe members giving back to their communities and raising awareness

PatientsLikeMe Names Michael Evers New Executive Vice President of Consumer and Technology Group

CAMBRIDGE, MA., May 11, 2015—PatientsLikeMe today announced it has named Michael Evers the head of its newly-formed consumer and technology group. In this role, Evers will focus on creating value for patients and directing the company’s marketing, engineering, user experience and design, product management, patient advocacy and government compliance teams. He reports directly to CEO… Continue reading PatientsLikeMe Names Michael Evers New Executive Vice President of Consumer and Technology Group

Compassion for all: Adrianne shares how friendship grew from the life-altering Boston Marathon Bombing

From our partners and friends at the Schwartz Center for Compassionate Healthcare. In 2013, Adrianne joined the Schwartz Center in honoring the caregivers who saved her life after she was injured in the Boston Marathon Bombing, including a special thank you to Jeff Kalish, MD, of Boston Medical Center who performed her surgeries. Research shows… Continue reading Compassion for all: Adrianne shares how friendship grew from the life-altering Boston Marathon Bombing