Living with ALS involves making many important decisions about care, treatment, and planning for the future. One crucial decision that often arises is when to pursue genetic counseling. Understanding the right timing for genetic counseling can make a significant difference in your journey with ALS. Key Moments to Consider Genetic Counseling At Initial Diagnosis When… Continue reading When to Consider Genetic Counseling in Your ALS Journey
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
Heart Healthy Buddha Bowl Recipe
What is a Buddha Bowl? When I talk about “Buddha Bowls” though, they are just more of a concept I made up because it’s all about quickly throwing a whole bunch of easy, super nutritious, and delicious ingredients in ONE bowl. Busy lives call for throw-together meals and snacks, and that’s why a big bowl… Continue reading Heart Healthy Buddha Bowl Recipe
Heart and Kidney Friendly Ways to Manage Potassium Levels At Home
Maintaining balanced potassium levels is crucial for both heart and kidney health. Potassium is an essential mineral that helps with muscle function, nerve signaling, and fluid balance in the body. However, both low and high potassium levels can pose serious health risks, especially to the heart and kidneys. In this article, we’ll dive into how… Continue reading Heart and Kidney Friendly Ways to Manage Potassium Levels At Home
Depression Signs in Early Stage Kidney Disease
Dealing with early-stage kidney disease (CKD) can be tough, and many people focus mainly on the physical symptoms while not realizing how much it can affect their mental health. Depression is often one of the first signs that CKD is taking a toll, but it can be hard to spot because it tends to start… Continue reading Depression Signs in Early Stage Kidney Disease
Setting and Respecting Your Food and Exercise Boundaries In a Relationship
How are you at setting boundaries in a relationship? This is an important step to take and can help protect you and your partner’s well-being. This is especially true when it comes to food and exercise! For anyone who has started a GLP-1 medication, you know that there are a lot of changes to your… Continue reading Setting and Respecting Your Food and Exercise Boundaries In a Relationship
What Genetic Testing for ALS Can (and Cannot) Tell You
Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord, leading to loss of muscle control over time. It is a profoundly life-changing diagnosis, not only for those living with the disease but also for their loved ones. For many, grappling with the uncertainty of what… Continue reading What Genetic Testing for ALS Can (and Cannot) Tell You
What Therapies Are There for Treating nrSPMS?
Medically reviewed and verified by Kate Burke, MD, MHA When facing a diagnosis of nrSPMS, one of the most common questions patients and caregivers have is what are our options for treatment? nrSPMS is a chronic disease that affects the central nervous system. While nrSPMS has no cure, there are treatments available to slow the… Continue reading What Therapies Are There for Treating nrSPMS?
How to Talk to Your Doctor About nrSPMS
Medically reviewed and verified by Kate Burke, MD, MHA Do you or a loved one have multiple sclerosis (MS)? This condition is a complex and challenging one to deal with. Not only does MS affect you physically and emotionally, but people with the condition have found it particularly hard to talk about with their doctors.… Continue reading How to Talk to Your Doctor About nrSPMS
What is Non-Relapsing Secondary Progressive Multiple Sclerosis (nrSPMS)?
Medically reviewed and verified by Kate Burke, MD, MHA Multiple sclerosis (MS) is, in a word, unpredictable. This complex disease affects the central nervous system and leads to a wide range of symptoms. It can take a few different forms! Some see a regular progression of the disease. Others see sudden relapses followed by remission.… Continue reading What is Non-Relapsing Secondary Progressive Multiple Sclerosis (nrSPMS)?
Understanding the Different Categories of MS
Medically reviewed and verified by Kate Burke, MD, MHA Multiple sclerosis (MS) is an autoimmune disease that affects the central nervous system (CNS). In the United Sates alone, almost 1 million people were diagnosed with the condition in 2019. In MS, the body’s immune system attacks nerve fibers, disrupting their ability to send signals. This… Continue reading Understanding the Different Categories of MS