Every year, hundreds of thousands of people in the United States survive a heart attack and get back to full, productive lives. But the weeks and months after a heart attack are a critical time. Many people focus on “getting back to normal.” In doing so, they sometimes ignore symptoms that could mean complications or… Continue reading SoundsLikeMe: Warning Signs After a Heart Attack That Are Easy to Dismiss During Recovery
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
Does Meal Timing Matter with CKD and Your Protein Intake
If you’re living with Chronic Kidney Disease (CKD), you’ve probably heard a lot about how much protein to eat. But what about when you eat it? The truth is, meal timing can play a helpful role in how your body uses protein. And when you’re managing CKD, small shifts like eating enough protein throughout the… Continue reading Does Meal Timing Matter with CKD and Your Protein Intake
The 10-Minute Daily Routine That Helps Three Conditions at Once
Time and time again researchers have found that going for a walk has tremendous health benefits. Not only does it decrease the risk and severity of conditions like cardiovascular disease, type II diabetes, and dementia, but it also improves mental well-being and leads to better sleep! If you have type II diabetes, hypertension, or cardiovascular… Continue reading The 10-Minute Daily Routine That Helps Three Conditions at Once
Cognitive Exercises that Actually Help MS Brain Fog
Brain fog, or cognitive dysfunction as it is known in the medical community, is a common symptom of MS. Numbers vary, but about half of people with MS will experience brain fog at some point. It can be incredibly frustrating! Issues with memory and attention, having trouble recalling details, feeling like the word you need… Continue reading Cognitive Exercises that Actually Help MS Brain Fog
Helping You Get the Neurological Care You Need from Home with Synapticure
At PatientsLikeMe, we know that living with a neurological condition can be overwhelming, not just for the person experiencing it, but for families and caregivers too. That’s why we’re excited to partner with Synapticure, a virtual neurology clinic that’s transforming the way people get care. Why Synapticure Exists Synapticure was started by Sandra Abrevaya and… Continue reading Helping You Get the Neurological Care You Need from Home with Synapticure
Getting Pregnant With Friedreich’s Ataxia: What Research Suggests
Family planning while living with Friedreich’s ataxia (FA) stirs up a mix of hope, excitement, fear, and a thousand practical questions. While there are many questions around symptom severity and genetics of your children, the first pressing question is .. is getting pregnancy (realistically) possible? The research is limited but meaningful and points to something… Continue reading Getting Pregnant With Friedreich’s Ataxia: What Research Suggests
Multiple Sclerosis vs Friedreich’s Ataxia
Balance feels off. Walking starts to take more attention than it used to. Fatigue shows up like a weighted blanket without the calming effects. When these symptoms show up in your day to day, it can be hard to tell what is going on because more than one neurological condition can look similar on the… Continue reading Multiple Sclerosis vs Friedreich’s Ataxia
Friedreich’s Ataxia vs. Charcot-Marie-Tooth Disease
Friedreich’s Ataxia (FA) and Charcot-Marie-Tooth Disease (CMT) are conditions that can affect walking, balance and the nerves in your arms and legs. They are both genetic and can present in childhood, teen years, or adulthood. So how do healthcare professionals tell the difference? Well, the difference depends where the problem is in the nervous system.… Continue reading Friedreich’s Ataxia vs. Charcot-Marie-Tooth Disease
Symptoms of Friedreich’s Ataxia
Friedreich’s ataxia rarely announces itself all at once. It begins with small changes that are easy to dismiss like stumbling, fatigue that doesn’t match activity level, or speaking slower than normal. Over time these signs can pile up without a clear explanation as to what is causing them even as they progress. This is why… Continue reading Symptoms of Friedreich’s Ataxia
Friedreich’s Ataxia Resources and Support Groups
It’s been 28 years since the frataxin (FXN) gene, which is linked to Friedreich’s Ataxia, was discovered and still Friedreich’s Ataxia often comes with more questions than answers. Parents, patients, and caregivers can feel isolated while learning about a condition in real time when many clinicians rarely see it. Beyond chasing a diagnosis, daily life… Continue reading Friedreich’s Ataxia Resources and Support Groups