At PatientsLikeMe, we strive to put the interests of you, the patient, first in everything we do. After all, you are the customers of the healthcare industry, and you deserve to have a say about the products and services created for you. Unfortunately, your needs and opinions often haven’t had the influence on the decision-making… Continue reading Treat us right: Comparing Cymbalta and Lyrica in the fibromyalgia community
Category: Organ Transplants
Share and Compare: The Launch of Two Medications
The launch of a new medication can be a very exciting event. It can renew hope for a better future and provide proof of the billions spent on research every year. It can also stimulate a lot of interesting conversation. Or not. We’ve learned from you that not every new medication warrants your attention and… Continue reading Share and Compare: The Launch of Two Medications
One for All: A Cross View of Patient Sharing
With more than 82,000 patients on PatientsLikeMe, there’s a lot of information being shared with one another. Last month, we highlighted how your sharing affects the experience of many on our site (One For All series). Today, we continue that theme by taking a look at information being shared across all of our communities that… Continue reading One for All: A Cross View of Patient Sharing
Learning from Others: Newsletter Highlights 2011
In the spirit of the New Year, here are some highlights from our recent newsletter. Read what patients like you have to say about what they’re most interested in learning from other patients this year. * * * (Amy) What are you most interested in learning from other patients this year? (bradley25 – Mood Conditions… Continue reading Learning from Others: Newsletter Highlights 2011
Listen Up! Here Comes The Patient Voice
In addition to hearing from you through our PatientsLikeMe newsletters, we sometimes get a chance to meet you in person to hear what you have to say about living with your condition. Here are two videos highlighting interviews we conducted in 2010 with patients just like you. In the first video, you’ll hear directly… Continue reading Listen Up! Here Comes The Patient Voice
Comparing Our Transplants Community to the UNOS/OPTN Databases
Last November (2010), PatientsLikeMe was fortunate to have the opportunity to showcase our research at the world’s largest gathering of kidney and kidney transplant professionals. The American Society of Nephrology (ASN) annual meeting is the premiere event platform for debuting revolutionary treatments, cutting-edge technological breakthroughs and top research findings. PatientsLikeMe presented a poster about our… Continue reading Comparing Our Transplants Community to the UNOS/OPTN Databases
Aligning Interests: A PatientsLikeMe Year in Review (Part VII – Business Development)
2010 was a strong year for business development at PatientsLikeMe. Our goal was – and continues to be – to align patients’ needs with industry interests in order to maximize interaction between the two. Here are a few of our successes and challenges over the year. Successes 1. New Partnerships, New Communities In the first… Continue reading Aligning Interests: A PatientsLikeMe Year in Review (Part VII – Business Development)
Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)
Why does it feel like “second nature” for PatientsLikeMe to create innovative partnerships with nonprofits? Nonprofit organizations are dedicated and centered around putting patients first – a concept that’s near and dear to us too. In 2010, we focused on refining our nonprofit partnerships to bring more events and programs to patients, both online and… Continue reading Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)
Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)
With every new member at PatientsLikeMe, there is more data generated for research, more dialogue about individual experiences, and a more expansive support network. Additionally, with more patients we can become the world’s largest and loudest representative of the patient voice. To that end, our job in marketing is to share your stories and tell… Continue reading Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)
Tech Talk: A PatientsLikeMe Year in Review (Part IV – Tech)
The PatientsLikeMe engineering team is excited to highlight some of the work that went on behind the scenes in 2010 to make this site what it is today. We tend to write more specifically about our work on a separate blog (http://tech.patientslikeme.com), so feel free to follow our work there as well. In addition to… Continue reading Tech Talk: A PatientsLikeMe Year in Review (Part IV – Tech)