PatientsLikeMe Featured on Bloomberg TV

On October 9th, Bloomberg TV aired a four-and-a-half minute “Innovators” segment profiling PatientsLikeMe’s journey as company.  Filmed partially in our office in Cambridge, Massachusetts, the piece features PatientsLikeMe Co-Founder and Chairman Jamie Heywood as well as Ed Sikov, a PatientsLikeMe member with Parkinson’s disease.  Our thanks go to Bloomberg’s Nicole Lapin for her in-depth coverage… Continue reading PatientsLikeMe Featured on Bloomberg TV

Mental Illness Awareness Week 2012: Dismantling the Stigma

Did you know that one in four adults – or approximately 57.7 million Americans – experiences a mental health problem in any given year?  Or that one in 17 lives with a serious, chronic mental illness? Since 1990, National Mental Illness Awareness Week has been recognized by the U.S. Congress as a time for mental… Continue reading Mental Illness Awareness Week 2012: Dismantling the Stigma

Rediscovering Life’s Simple Pleasures: An Interview with a Heart Patient

Last week, we recognized World Heart Day on the blog and discussed why there is an urgent need for awareness about heart disease and stroke, the world’s number one killer.  We also talked about how heart disease can be an abstract concept until you are exposed to someone’s personal story. That’s why we are pleased… Continue reading Rediscovering Life’s Simple Pleasures: An Interview with a Heart Patient

Recognizing the Rare Disease Community’s Champions of Hope

Did you know that 1 in 10 people worldwide have rare and genetic conditions? PatientsLikeMe was a proud sponsor of the 1st Annual Tribute to Champions of Hope, organized by our partner the Global Genes / RARE Project. Held on September 27th in Newport Beach, CA, the gala recognized outstanding individuals who are working to affect… Continue reading Recognizing the Rare Disease Community’s Champions of Hope

Creating Your “A Team” for Health

Today’s guest post is written by PatientsLikeMe Vice President for Advocacy, Policy and Patient Safety Sally Okun, RN, MMHS. Getting health care can often feel like you’re trying to put together a difficult jigsaw puzzle, only to find that some of the pieces are missing. Even under the best circumstances, navigating the health care system is… Continue reading Creating Your “A Team” for Health

World Heart Day: Taking Prevention to Heart

Did your heart beat a little faster this weekend?  This past Saturday was World Heart Day, sponsored by the World Heart Federation. Founded in 2000, this global event was created to educate the public about heart disease and stroke, the world’s leading cause of death, claiming 17.3 million lives each year.  What’s a major concern… Continue reading World Heart Day: Taking Prevention to Heart

Today’s Photo: 2012 Ride for Dads in Minnesota

Earlier this month, we shared a video interview with PatientsLikeMe member Wayne Sticha, who founded the Ride for Dads in 2010 to raise awareness of prostate cancer. Since September is National Prostate Cancer Awareness Month, we wanted to close out the month by sharing one of Wayne’s photos from 2012 Ride for Dads, which involved… Continue reading Today’s Photo: 2012 Ride for Dads in Minnesota

What We’ve Uncovered About Psoriasis in the Summertime

Want to connect with and learn from psoriasis patients like you? Join PatientsLikeMe Now! (It’s free) Are people with psoriasis more likely to cover up with pants and long sleeves in warm weather?  Or are they okay with “showing some skin” in shorts and tank tops?  This is just one of the things we set… Continue reading What We’ve Uncovered About Psoriasis in the Summertime

How Social Media Helped Me Adjust to My New Life: An ALS Patient Essay

Want to connect with and learn from others with ALS? Join PatientsLikeMe Now! (It’s free) “Social media is the MOST important means of socialization, communication and education for patients and their caregivers today, particularly with a disease like ALS where our minds are still sharp and active inside our failing bodies.  Sites like PatientsLikeMe, Facebook… Continue reading How Social Media Helped Me Adjust to My New Life: An ALS Patient Essay

How Social Media Is Changing Research (Part II): A Guest Post by MS Clinical Trial Participant and Blogger Jeri Burtchell

Today’s guest post is written by PatientsLikeMe member Jeri Burtchell (TickledPink), who has been living with multiple sclerosis (MS) for 13 years.  A tie dye apparel store owner and mother of two, she writes a blog entitled “Gilenya and Me:  My Story of Being an MS Patient, a Hypochondriac and a Guinea Pig.”  Her patient… Continue reading How Social Media Is Changing Research (Part II): A Guest Post by MS Clinical Trial Participant and Blogger Jeri Burtchell