We continue our series from last week of getting to you the person, not just the “patient.” Here’s an interview with member “Bradley25,” a member of our PatientsLikeMe Mood Community who was interviewed for our January newsletter. Read on to learn more about how comparing his condition over time has helped give him hope… Continue reading Mood Patient Interview: How Far I’ve Come
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
Share Your Data to Untangle ALS!
Our ALS Community recently broke the 5,000-member mark, making it the largest of its kind in the world as well as the ideal platform for expedited research. And that’s just what we’re working on. Since the community’s launch in 2006, we’ve conducted a number of research studies, both internally and in collaboration with leaders in… Continue reading Share Your Data to Untangle ALS!
The Patient Voice: Exploring New Chapters
We’ve got more of the patient voice taking us into the weekend. Today we have an interview with AlwaysLearning, a 3-star member of our Parkinson’s Disease Community. We caught up with AlwaysLearning at the 2010 Parkinson’s Disease Unity Walk last spring. She shared with us how she learned about her diagnosis and some of the… Continue reading The Patient Voice: Exploring New Chapters
Listen Up! Here Comes The Patient Voice
In addition to hearing from you through our PatientsLikeMe newsletters, we sometimes get a chance to meet you in person to hear what you have to say about living with your condition. Here are two videos highlighting interviews we conducted in 2010 with patients just like you. In the first video, you’ll hear directly… Continue reading Listen Up! Here Comes The Patient Voice
ALS Patient Interview: Never Give Up
We continue our series this week of getting to you the person, not just the “patient.” Today’s interview is with “iceberg,” a member of our PatientsLikeMe ALS Community and another 2010 newsletter interviewee. Read on to learn more about what keeps him motivated, how his condition has affected his work life and how he… Continue reading ALS Patient Interview: Never Give Up
Parkinson’s Patient Interview: A Spring in Your Step
As you know, we like to just check in with our members to see how you’re doing as a person, not just a patient. This week on the blog, we’re highlighting some interviews to help you get to know some of the people here just like you. Here’s an interview with member “angela_b,” a member… Continue reading Parkinson’s Patient Interview: A Spring in Your Step
Comparing Our Transplants Community to the UNOS/OPTN Databases
Last November (2010), PatientsLikeMe was fortunate to have the opportunity to showcase our research at the world’s largest gathering of kidney and kidney transplant professionals. The American Society of Nephrology (ASN) annual meeting is the premiere event platform for debuting revolutionary treatments, cutting-edge technological breakthroughs and top research findings. PatientsLikeMe presented a poster about our… Continue reading Comparing Our Transplants Community to the UNOS/OPTN Databases
Aligning Interests: A PatientsLikeMe Year in Review (Part VII – Business Development)
2010 was a strong year for business development at PatientsLikeMe. Our goal was – and continues to be – to align patients’ needs with industry interests in order to maximize interaction between the two. Here are a few of our successes and challenges over the year. Successes 1. New Partnerships, New Communities In the first… Continue reading Aligning Interests: A PatientsLikeMe Year in Review (Part VII – Business Development)
Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)
Why does it feel like “second nature” for PatientsLikeMe to create innovative partnerships with nonprofits? Nonprofit organizations are dedicated and centered around putting patients first – a concept that’s near and dear to us too. In 2010, we focused on refining our nonprofit partnerships to bring more events and programs to patients, both online and… Continue reading Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)
Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)
With every new member at PatientsLikeMe, there is more data generated for research, more dialogue about individual experiences, and a more expansive support network. Additionally, with more patients we can become the world’s largest and loudest representative of the patient voice. To that end, our job in marketing is to share your stories and tell… Continue reading Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)