Conditions Archives

Patients at work: Member Ellen on launching her own clothing line

PatientsLikeMe members often talk about how they’re more than their diagnosis. They’re patients, but they’re also people, with complex lives, families, hobbies and careers. Today, we’re kicking off a series of blogs about that last one — working with a chronic condition. We’ll be featuring some enterprising members who have started (or are working on)… Continue reading Patients at work: Member Ellen on launching her own clothing line

PatientsLikeMe Launches Virtual Trial for ALS Patients

Study With Major Academic Medical Center to Evaluate the Potential of the Soy Peptide Lunasin to Reverse ALS Symptoms DURHAM, N.C., October 25, 2016—PatientsLikeMe and The Duke ALS Clinic have just completed enrollment in a virtual trial designed to test whether Lunasin, a peptide found in soy and some cereal grains, is helpful or harmful… Continue reading PatientsLikeMe Launches Virtual Trial for ALS Patients

“I have been empowered to face the challenges of my condition” – Member Deb shares her journey with type 2 diabetes

Meet Deb (optimisticrealist), a self-described optimist who found no challenge too daunting, exercised daily and maintained a healthy diet. We recently caught up with her and she told us how her type 2 diabetes diagnosis changed the way she thought about what it meant to be healthy. Learn more about Deb’s story and what she… Continue reading “I have been empowered to face the challenges of my condition” – Member Deb shares her journey with type 2 diabetes

“Listen to yourself.” Member Daniela opens up about life with MS and psoriasis

Daniela (DanielaO) is living with multiple sclerosis and psoriasis in Puglia, Italy, and loves crafts, art history, music and traveling. She recently opened up to us about getting her first diagnosis at age 14, managing multiple conditions, and how connecting with others on PatientsLikeMe makes her feel “present and part of a whole.” Here’s what… Continue reading “Listen to yourself.” Member Daniela opens up about life with MS and psoriasis

“I have been trying to push myself more, little by little.” Member Christopher shares his journey with PTS

We recently got the chance to talk with Christopher (crine312), a computer-savvy dog lover and U.S. Air Force veteran living with PTS and bipolar. Christopher opened up about life after serving in the military — how he sometimes still thinks in military time and tries to avoid news reports about war — and the challenges… Continue reading “I have been trying to push myself more, little by little.” Member Christopher shares his journey with PTS

Cancer Awareness in September: prostate, thyroid and ovarian

September is all about education — and not just because it’s back to school month. It’s also the official awareness month for three different types of cancer: prostate, thyroid and ovarian. Here’s a snapshot of what national organizations have done to spread more understanding… Prostate cancer: #StepUp, get checked The Prostate Cancer Foundation (PCF) has… Continue reading Cancer Awareness in September: prostate, thyroid and ovarian

Overcoming Multiple Sclerosis: Member Casper opens up about his MS journey

We recently got to know Casper (casper80), a member of the MS community who’s been living with his condition for nearly a decade. Along with tracking his health on PatientsLikeMe, Casper follows the “Overcoming Multiple Sclerosis Recovery Program” (OMS), founded by Professor George Jelinek of the University of Melbourne over 15 years ago. The program focuses… Continue reading Overcoming Multiple Sclerosis: Member Casper opens up about his MS journey

Redefining Patient Partnerships: Looking back on the 2015-2016 Team of Advisors

It’s been quite a year for the 2015–2016 Team of Advisors. This year’s team was tasked with bringing the patient voice to a central issue in healthcare: how to redefine patient partnerships. Over the past several months, they’ve worked together to rethink what it means for patients to be partners and establish new ways for… Continue reading Redefining Patient Partnerships: Looking back on the 2015-2016 Team of Advisors

“The most important thing is to know you are not alone” — Member Vicki opens up about her TBI

Vicki (Vickikayb) is an avid gardener, volunteers at a wildlife rehabilitation center and loves to cheer on the Kentucky Wildcats. She’s also been living with a traumatic brain injury (TBI) since 2004. In a recent interview, Vicki shared how she lives a full life in spite of her condition and how it’s inspired a new… Continue reading “The most important thing is to know you are not alone” — Member Vicki opens up about her TBI

“I have learned and grown from this and now I want to help others” — Iris shares her story for Ovarian Cancer Awareness Month

September is Ovarian Cancer Awareness Month, so we caught up with member Iris (Imartinez) to find out what living with this condition is really like. Iris opened up about getting diagnosed at just 28 years old, the challenges of her treatment journey and her passion for riding her motorcycle. For Iris, attitude is everything: “Having… Continue reading “I have learned and grown from this and now I want to help others” — Iris shares her story for Ovarian Cancer Awareness Month