Over the years, PatientsLikeMe members living with Parkinson’s disease have discussed a lot of products and ideas for living better with PD. From kitchen knives and eating utensils to shoe horns and shoelaces, we’ve compiled a list of tools you’ve talked about for (almost) every room in the house and many different aspects of life.… Continue reading What products help people live better with Parkinson’s disease? A room-by-room round-up
Category: Conditions
Living with a health condition? On the PatientsLikeMe blog, find helpful health information and patient stories about being diagnosed, trying different treatments, and living day-to-day with a chronic condition.
Putting together an MS emergency bag: What’s on your must-have list?
From managing incontinence to temperature changes and sudden muscle weakness, many people living with MS have items they can’t live without. Some PatientsLikeMe members have started carrying an emergency bag with all the essentials to deal with inconvenient MS curveballs. Check out their suggestions: If you had an MS emergency bag, what would be inside?
Light therapy for depression: What is it, and how does it work?
Bright light therapy is a treatment that’s become increasingly common for treating seasonal affective disorder, a condition that impacts many during the winter months. We sat down with our in-house research specialist to discuss light therapy – what it is, how it works and if it can help treat other types of depression in addition to… Continue reading Light therapy for depression: What is it, and how does it work?
Communicating with ALS: From devices to voice banking
Difficulty with speech and communication is a frustrating reality for many living with ALS. From apps to devices and voice banking, communication is a popular topic (as in over 35k conversations) on PatientsLikeMe, so we took a closer look into some of the options out there for pALS. Tablets: Windows vs. iPad vs. Android Trouble with typing… Continue reading Communicating with ALS: From devices to voice banking
“You get out of life what you make it”: Member Anna shares her experience living with IPF
Meet PatientsLikeMe member Anna, who’s been living with IPF since 2011. Below, see what she shared with us about her diagnosis, how she fills her days with the things she loves, and how she’s learned to tackle daily tasks like shopping and cleaning while living with a chronic condition. She also touched on how PatientsLikeMe helped… Continue reading “You get out of life what you make it”: Member Anna shares her experience living with IPF
PTSD Nightmares: Why they’re happening and what you can do
More than 1,600 members of the PTSD community on have reported experiencing severe nightmares, and there are dozens of forum threads tagged with topic. So, we took a deeper dive into PTSD nightmares and some of the research-backed approaches you can try to help manage them. How common are nightmares after trauma? The quick answer: Very common. According… Continue reading PTSD Nightmares: Why they’re happening and what you can do
Life-changing second opinion stories: “I decided to get a second and third opinion…”
Stories showing the importance of second opinions have been popping up in the media and on PatientsLikeMe. Check out the recent news headlines, hear a remarkable story of a PatientsLikeMe member who received a life-saving lung transplant after getting a second (and third) opinion, and share your own experience of piecing together your health puzzle.… Continue reading Life-changing second opinion stories: “I decided to get a second and third opinion…”
Weed 101: How and why patients use medical marijuana
Medical marijuana is a hot topic in the news (and here in the PatientsLikeMe community). So we took a closer look into what it is, how it works, and what members are saying about it. Take a look: Do you use medical marijuana? Head to PatientsLikeMe to join the conversation and share your experience. Share this… Continue reading Weed 101: How and why patients use medical marijuana
Tips on how to find a Psychologist
So, you’re thinking about going to therapy — what are you supposed to do next? We got in touch with Registered Psychologist Sean Keating to ask his advice. Sean has been a practicing psychologist for six years, and currently works as an early psychosis clinician. He focuses on early intervention for young people between the… Continue reading Tips on how to find a Psychologist
How Many Kinds of Diabetes Are There? Lots. Explore Type 1, Type 2, LADA And More
Confused about the different types of diabetes? Never heard of other forms of diabetes beyond “1” and “2”? You’re not alone. As American Diabetes Month comes to a close, we’re shedding some light on this topic. Overall, more than 30 million Americans (9.4 percent of the U.S. population) have diabetes. Here’s a guide to help you and… Continue reading How Many Kinds of Diabetes Are There? Lots. Explore Type 1, Type 2, LADA And More