We’ve got more of the patient voice taking us into the weekend. Today we have an interview with AlwaysLearning, a 3-star member of our Parkinson’s Disease Community. We caught up with AlwaysLearning at the 2010 Parkinson’s Disease Unity Walk last spring. She shared with us how she learned about her diagnosis and some of the… Continue reading The Patient Voice: Exploring New Chapters
Category: Parkinson’s Disease
Listen Up! Here Comes The Patient Voice
In addition to hearing from you through our PatientsLikeMe newsletters, we sometimes get a chance to meet you in person to hear what you have to say about living with your condition. Here are two videos highlighting interviews we conducted in 2010 with patients just like you. In the first video, you’ll hear directly… Continue reading Listen Up! Here Comes The Patient Voice
Parkinson’s Patient Interview: A Spring in Your Step
As you know, we like to just check in with our members to see how you’re doing as a person, not just a patient. This week on the blog, we’re highlighting some interviews to help you get to know some of the people here just like you. Here’s an interview with member “angela_b,” a member… Continue reading Parkinson’s Patient Interview: A Spring in Your Step
Aligning Interests: A PatientsLikeMe Year in Review (Part VII – Business Development)
2010 was a strong year for business development at PatientsLikeMe. Our goal was – and continues to be – to align patients’ needs with industry interests in order to maximize interaction between the two. Here are a few of our successes and challenges over the year. Successes 1. New Partnerships, New Communities In the first… Continue reading Aligning Interests: A PatientsLikeMe Year in Review (Part VII – Business Development)
Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)
Why does it feel like “second nature” for PatientsLikeMe to create innovative partnerships with nonprofits? Nonprofit organizations are dedicated and centered around putting patients first – a concept that’s near and dear to us too. In 2010, we focused on refining our nonprofit partnerships to bring more events and programs to patients, both online and… Continue reading Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)
Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)
With every new member at PatientsLikeMe, there is more data generated for research, more dialogue about individual experiences, and a more expansive support network. Additionally, with more patients we can become the world’s largest and loudest representative of the patient voice. To that end, our job in marketing is to share your stories and tell… Continue reading Tell The World: A PatientsLikeMe Year in Review (Part V – Marketing)
Tech Talk: A PatientsLikeMe Year in Review (Part IV – Tech)
The PatientsLikeMe engineering team is excited to highlight some of the work that went on behind the scenes in 2010 to make this site what it is today. We tend to write more specifically about our work on a separate blog (http://tech.patientslikeme.com), so feel free to follow our work there as well. In addition to… Continue reading Tech Talk: A PatientsLikeMe Year in Review (Part IV – Tech)
Share and Compare: A PatientsLikeMe Year in Review (Part III – more R&D)
The research team is very proud of how our team has grown in 2010 and the impact we’ve made in the academic community. In 2010 alone, PatientsLikeMe and our work were mentioned in scientific literature more than 133 times. All of this is because of what you share with us. Yesterday, we highlighted some of… Continue reading Share and Compare: A PatientsLikeMe Year in Review (Part III – more R&D)
One for All: A PatientsLikeMe Year in Review (Part 1)
Thanks everyone for a great 2010. As we kick off the New Year, PatientsLikeMe would like to take a quick look back at the road we’ve traveled together this year. We think of all these improvements as laying the groundwork for even more exciting changes to come in 2011. At the start of 2010, we… Continue reading One for All: A PatientsLikeMe Year in Review (Part 1)
Overcoming Obstacles – Newsletter Highlight 2010
Last week, we posted highlights from our December community newsletter interviews. As we close out 2010, we want to spotlight another question asked this month – one that is relative to all members, all patients (no matter the condition). What obstacles have you faced and overcome this year? * * * (Amy) What obstacles have… Continue reading Overcoming Obstacles – Newsletter Highlight 2010