The heat isn’t letting up this summer – but that isn’t stopping our members from participating in disease-related walk/run events in their local communities. For inspiration, please meet some of the members of Parkinson’s disease patient daddytom’s team, who joined together to raise money and show solidarity at a Shake, Rattle and Roll Run sponsored… Continue reading Today’s Photo: Shake, Rattle and Roll
Category: Parkinson’s Disease
The Importance of Open Access: An Interview with Patient Advocate Graham Steel
A native of Glasgow, Scotland, Graham Steel is a longtime “Guest Researcher Member” of PatientsLikeMe. Following the death of his brother Richard at the age of 33 from a rare condition known as variant Creutzfeldt-Jakob Disease (vCJD), Graham became involved in patient advocacy work, and most recently, in lobbying for open access to published scientific… Continue reading The Importance of Open Access: An Interview with Patient Advocate Graham Steel
A Peek at the June Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our June edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up to… Continue reading A Peek at the June Newsletter for Members
Faces Wanted: One Man’s Mission to Drive Awareness of Parkinson’s Disease
“I have a hope that this foundation has a short life. We exist to help fund and find a cure. To do that we need to generate and raise awareness of Parkinson’s disease and its impact to the public. Awareness in turn will aid in generation of funding. Funding for a cure and funding for… Continue reading Faces Wanted: One Man’s Mission to Drive Awareness of Parkinson’s Disease
Why Should I Participate in a Clinical Trial?
“Before me, there were hundreds and thousands of other people with Parkinson’s who participated in clinical trials that gave me the ability to have the medications that I take today. If people today do not participate in clinical trials, there will be no cure. There will be no new medications.” – Parkinson’s patient Jean Last… Continue reading Why Should I Participate in a Clinical Trial?
Women’s Health Week: “It’s Your Time”
Ladies, we know your lives get busy. So why not pull out your calendar or smartphone right now and see if you’re due for a visit to your health care providers? You’ll be doing your part for National Women’s Checkup Day (observed today, Monday, May 14th), an annual event that’s part of National Women’s Health… Continue reading Women’s Health Week: “It’s Your Time”
Six Days Until the Parkinson’s Unity Walk
Parkinson’s Awareness Month isn’t over yet! This month-long effort is capped off by the Parkinson’s Unity Walk, which takes place Saturday, April 28th, in New York City’s Central Park. The largest grassroots awareness event for Parkinson’s disease (PD), the Unity Walk is anticipated to attract more than 10,000 participants. If you’ve never attended something of… Continue reading Six Days Until the Parkinson’s Unity Walk
Interview with Jim Atwell, Author of “Wobbling Home: A Spiritual Walk with Parkinson’s”
Continuing our coverage of Parkinson’s Awareness Month, we’d like to introduce you to Jim Atwell, a PatientsLikeMe member who has been living with Parkinson’s disease (PD) since 2007. A retired college professor, late-in-life farmer and weekly columnist for his rural newspaper, Jim recently published his second book, Wobbling Home: A Spiritual Walk with Parkinson’s. This… Continue reading Interview with Jim Atwell, Author of “Wobbling Home: A Spiritual Walk with Parkinson’s”
Observing Parkinson’s Awareness Month
Since 2010, April has been designated as Parkinson’s Awareness Month by the US Senate. The goal is to shine a spotlight on the national impact of Parkinson’s disease (PD), which affects more than one million Americans. A progressive disorder of the nervous system, PD is often marked by muscle tremors, muscle rigidity, decreased mobility, stooped… Continue reading Observing Parkinson’s Awareness Month
A Peek at the February Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our February edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up… Continue reading A Peek at the February Newsletter for Members