Patients like you with life-changing conditions have to make choices every day, just like anyone else. These choices, however, typically have more at stake than how to RSVP to a party or even whether to walk away from an “underwater” home. For patients like you, your lives may be at stake. I have watched my… Continue reading The Choices Patients Like You – and Like My Mother – Face
Category: Rare Diseases
Treat us right: Comparing Cymbalta and Lyrica in the fibromyalgia community
At PatientsLikeMe, we strive to put the interests of you, the patient, first in everything we do. After all, you are the customers of the healthcare industry, and you deserve to have a say about the products and services created for you. Unfortunately, your needs and opinions often haven’t had the influence on the decision-making… Continue reading Treat us right: Comparing Cymbalta and Lyrica in the fibromyalgia community
Share and Compare: The Launch of Two Medications
The launch of a new medication can be a very exciting event. It can renew hope for a better future and provide proof of the billions spent on research every year. It can also stimulate a lot of interesting conversation. Or not. We’ve learned from you that not every new medication warrants your attention and… Continue reading Share and Compare: The Launch of Two Medications
One for All: A Cross View of Patient Sharing
With more than 82,000 patients on PatientsLikeMe, there’s a lot of information being shared with one another. Last month, we highlighted how your sharing affects the experience of many on our site. Today, we continue that theme by taking a look at information being shared across all of our communities that many of you may… Continue reading One for All: A Cross View of Patient Sharing
Aligning Interests: A PatientsLikeMe Year in Review (Part VII – Business Development)
2010 was a strong year for business development at PatientsLikeMe. Our goal was – and continues to be – to align patients’ needs with industry interests in order to maximize interaction between the two. Here are a few of our successes and challenges over the year. Successes 1. New Partnerships, New Communities In the first… Continue reading Aligning Interests: A PatientsLikeMe Year in Review (Part VII – Business Development)
Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)
Why does it feel like “second nature” for PatientsLikeMe to create innovative partnerships with nonprofits? Nonprofit organizations are dedicated and centered around putting patients first – a concept that’s near and dear to us too. In 2010, we focused on refining our nonprofit partnerships to bring more events and programs to patients, both online and… Continue reading Rising Together: A PatientsLikeMe Year in Review (Part VI: Nonprofit Partnerships)
Tech Talk: A PatientsLikeMe Year in Review (Part IV – Tech)
The PatientsLikeMe engineering team is excited to highlight some of the work that went on behind the scenes in 2010 to make this site what it is today. We tend to write more specifically about our work on a separate blog (http://tech.patientslikeme.com), so feel free to follow our work there as well. In addition to… Continue reading Tech Talk: A PatientsLikeMe Year in Review (Part IV – Tech)
One for All: A PatientsLikeMe Year in Review (Part 1)
Thanks everyone for a great 2010. As we kick off the New Year, PatientsLikeMe would like to take a quick look back at the road we’ve traveled together this year. We think of all these improvements as laying the groundwork for even more exciting changes to come in 2011. At the start of 2010, we… Continue reading One for All: A PatientsLikeMe Year in Review (Part 1)
Sharing and Learning with PatientsLikeMe
In December community newsletters (launched earlier this week), we asked some of our members to think about what they’ve shared and compared in 2010. Below are highlighted answers from each interviewee across all nine community newsletters. Thank you for your contributions. We also want to thank all of you who have contributed to the 90… Continue reading Sharing and Learning with PatientsLikeMe
Treat Us Right: Mapping What Patients Think About Medications
One of the ways we can better understand whether you, as patients, are having a positive or negative treatment experience is to “listen” to the conversation you’re having in our forum. By understanding whether you are having a positive, negative, or neutral experience with a particular treatment you are taking or are considering taking, we… Continue reading Treat Us Right: Mapping What Patients Think About Medications