Dr. Deborah Mash is a professor of neurology and molecular/cellular pharmacology at the University of Miami School of Medicine. She’s also the director of the university’s Brain Endowment Bank, and she recently spoke with PatientsLikeMe about her research and exactly what goes into donating your brain to science. As she says, “we still know very… Continue reading Talking Brain Donation with Dr. Deborah Mash
Throwback Thursday: Diabetes and stress
Just about two years ago, nearly 600 members of the PatientsLikeMe community completed a survey called the Diabetes Distress Scale (DDS), a 17-item questionnaire which measures the amount and types of problems diabetes can cause in a person’s life. And today, we’re throwing it back to the summary of the results. Here’s what Dr. William Polonsky,… Continue reading Throwback Thursday: Diabetes and stress
“I can see that there actually is help here.” – JustinSingleton shares his experiences with PTS
JustinSingleton is an Army veteran who recently joined PatientsLikeMe back in June, and he’s been exploring the veteran’s community ever since. This month, he wrote about his experiences in an interview, and below, you can read what he had to say about getting diagnosed with PTS, managing his triggers and the importance of connecting and… Continue reading “I can see that there actually is help here.” – JustinSingleton shares his experiences with PTS
Q & A with Mary Ann Singersen, Co-Founder/President of the A.L.S. Family Charitable Foundation
In 1998, Stephen Heywood, the brother of our co-founders Ben and Jamie, and friend of Jeff Cole, was diagnosed with ALS. They immediately went to work trying to find new ways to slow Stephen’s progression, and after 6 years of trial and error, they built PatientsLikeMe in 2004. Mary Ann Singersen also has family experience… Continue reading Q & A with Mary Ann Singersen, Co-Founder/President of the A.L.S. Family Charitable Foundation
Food for thought: August (diet) edition
Many mothers have told their children “you are what you eat,” but some PatientsLikeMe members have taken that idea one step further and are using their diets to try and manage the symptoms of their conditions. People have been sharing about everything from gluten-free to vegan diets – check out what some people said in… Continue reading Food for thought: August (diet) edition
Caregivers and companions – PatientsLikeMe members talk about their service animals
Service animals are often a topic of conversation in the PatientsLikeMe community, and many members frequently share their experiences with their furry friends. For example, Ted wrote about his service dog Catti-Brie in his blog interview. Here’s what other members are sharing about their animals: “Just last night when I was having a rough dream… Continue reading Caregivers and companions – PatientsLikeMe members talk about their service animals
Throwback Thursday: Dr. Steve Feldman speaks about psoriasis and medication adherence
In honor of Psoriasis Awareness Month, we’re throwing it back to January 2013, when we sat down with Steve Feldman, MD, PhD, and Professor of Dermatology, Pathology & Public Health Sciences at Wake Forest University School of Medicine. In his interview, he spoke about the challenges for psoriasis patients, as well as the treatment advances… Continue reading Throwback Thursday: Dr. Steve Feldman speaks about psoriasis and medication adherence
ORE Researcher Series: Dr. Larry Alphs Talks PROs and Depression
Dr. Larry Alphs, the Therapeutic Area Leader in Psychiatry for Janssen Pharmaceuticals, shared about his research as part of PatientsLikeMe’s ORE Researcher Series. You’ve already listened to Dr. Tamara Kear and the McMaster University researchers – click below to watch Dr. Alphs speak about a new drug that could eventually treat suicidal thoughts. … Continue reading ORE Researcher Series: Dr. Larry Alphs Talks PROs and Depression
Getting ready for psoriasis awareness
Image courtesy of the National Psoriasis Foundation Tomorrow is the official start of Psoriasis Awareness Month. The National Psoriasis Foundation (NPF) wants people with psoriasis to know they are not alone: Over 7.5 million people in the U.S. have been diagnosed with the condition, and more than 4,800 people with psoriasis are sharing what it’s like on PatientsLikeMe.… Continue reading Getting ready for psoriasis awareness
Hartfell shares about her PatientsLikeMeInMotion™ experience
PatientsLikeMe members hail from around the globe, and recently, 63 people gathered on the coast of Scotland for a walk to raise awareness of IPF and help people with IPF through Chest Heart & Stroke Scotland. The coolest part? The event was organized entirely online by PatientsLikeMe member Hartfell, and through the PatientsLikeMeInMotion™ program, everyone… Continue reading Hartfell shares about her PatientsLikeMeInMotion™ experience