MotherToBaby, a service of the non-profit Organization of Teratology Information Specialists (OTIS), is dedicated to providing evidence-based information to mothers, healthcare professionals and the general public about medications and other exposures during pregnancy and while breastfeeding. Check out our Q&A with Mara Gaudette, a certified genetic counselor with MotherToBaby in California. Mara also counsels women who… Continue reading A Q&A with Mara Gaudette, MS, CGC, Teratogen Information Specialist, MotherToBaby
Meet David from the PatientsLikeMe Team of Advisors
We’d like to introduce you to David, another member of your 2015-2016 PatientsLikeMe Team of Advisors. David has been living with Stage IV lung cancer for four years and hopes to be an inspiration to other cancer patients. He has worked to raise awareness for his condition as a political advocate for the NGO Lung… Continue reading Meet David from the PatientsLikeMe Team of Advisors
Rheumatoid Awareness: 7 Things You Might Not Know About RA
Rheumatoid disease can manifest in many different ways – fatigue, joint pain, stiffness and fever, to name a few — so it can be hard to understand the full scope of this condition. Learning from Community No matter which condition you are living with, you don’t have to do it alone. At PatientsLikeMe, there are thousands… Continue reading Rheumatoid Awareness: 7 Things You Might Not Know About RA
“I had no idea that my thyroid controls so much” — PatientsLikeMe member Barbara shares her experience for Thyroid Awareness Month
January is Thyroid Awareness Month. So, how much do you know about the small, butterfly-shaped gland that influences the way your heart, brain, liver, kidneys and skin function? To help spread #thyroidawareness, we asked member Barbara to tell us about living with thyroid cancer and hypothyroidism, a condition that affects over 6,000 PatientsLikeMe members. Barbara… Continue reading “I had no idea that my thyroid controls so much” — PatientsLikeMe member Barbara shares her experience for Thyroid Awareness Month
CHSG founder Chris Hannah shares how he tracks cluster headaches on PatientsLikeMe
In an interview last June, Chris Hannah, the founder of Cluster Headache Support Group (CHSG), discussed his experience with and thoughts on cluster headaches, clinical trials and more. We recently caught up with Chris to learn how he uses PatientsLikeMe to manage his condition, and the advice he gives to others living with cluster headaches.… Continue reading CHSG founder Chris Hannah shares how he tracks cluster headaches on PatientsLikeMe
“I try my best to make the most of each new day”– An interview with ALS member Brian
Brian (Dunric) is a former game developer and has been living with ALS since 1998. Unable to find a local ALS support group where he lives in Lodi, CA, he discovered PatientsLikeMe in 2012. In a recent interview, Brian opened up about dealing with the uncertainty of his condition the best way he knows how… Continue reading “I try my best to make the most of each new day”– An interview with ALS member Brian
Meet Jeff from the PatientsLikeMe Team of Advisors
Say hello to Jeff, another member of your 2015-2016 PatientsLikeMe Team of Advisors. Since he was diagnosed with Parkinson’s disease (PD) 20 years ago, Jeff does his best to stay active—in both exercise and advocacy. Keeping up with his two teenage daughters is challenging enough, but when he’s up to it, Jeff also golfs, plays… Continue reading Meet Jeff from the PatientsLikeMe Team of Advisors
Meet Craig from the PatientsLikeMe Team of Advisors
We recently sat down with Craig, one of your 2015-2016 PatientsLikeMe Team of Advisors. Craig is living with fibromyalgia and severe degenerative disc disease, the result of a serious car accident in 1978. Craig is active on PatientsLikeMe and other online communities, where he adds his voice to discussions about chronic pain, healthy living and… Continue reading Meet Craig from the PatientsLikeMe Team of Advisors
“It is definitely a daily challenge” – An interview with PTS member Holden
Holden Montgomery (holdenmonty), an administration support technician for the Air Force Space Command, was deployed to Afghanistan in 2010 and later diagnosed with PTS, depression, and anxiety. He joined PatientslikeMe in March 2015, where he’s been connecting with other vets and sharing how he copes with his conditions. We recently caught up with Holden, and… Continue reading “It is definitely a daily challenge” – An interview with PTS member Holden
Meet John from the PatientsLikeMe Team of Advisors
We’d like to introduce you to John, another member of your 2015-2016 PatientsLikeMe Team of Advisors. Shortly after being diagnosed with ALS in January 2014, John decided to retire from his 37-year career in IT. His new focus? Learning everything he possibly can about his condition — and plenty of fishing. Fueled by what he… Continue reading Meet John from the PatientsLikeMe Team of Advisors