The beginning of a new year is always a time for reflection. You look back, you look ahead and you try to find the big picture. For patients living with chronic health conditions, a new year can be an opportunity to implement and share lessons learned along the way – about how to cope, manage… Continue reading What Would You Tell Yourself 10 Years Ago?
A Patient Poem for the Modern Age
Can you be friends with someone you’ve never met in person? The members of our online health community – now 300, 000+ patients strong – think so. In fact, many of them say they depend on other members for support and encouragement, and for the all-important reminder that they are not alone. As evidence, here… Continue reading A Patient Poem for the Modern Age
Use It or Lose It?
You’ve all heard the phrase “use it or lose it” before. But should it be applied to patients with chronic, debilitating illnesses? That’s an ongoing debate in the PatientsLikeMe forums. Take for example this discussion of cognitive difficulties in our Multiple Sclerosis Forum. On the one hand, there’s the argument that brain exercises such as… Continue reading Use It or Lose It?
Spirited Support at the Jingle Bell Run/Walk for Arthritis
We’ve sponsored hundreds of fundraising teams through our PatientsLikeMeInMotion program, but we’re pretty sure this team wins the blue ribbon for most festive. Please meet PatientsLikeMe member Kennqueen’s very colorful team, who donned their best tutus and striped socks for the Jingle Bell Run/Walk for Arthritis in Richland, Washington, on November 17, 2012. Kennqueen has… Continue reading Spirited Support at the Jingle Bell Run/Walk for Arthritis
Join the Robert Wood Johnson Foundation’s $200,000 Developer Challenge!
Can a game app lead to better health? The Robert Wood Johnson Foundation thinks so. They’ve announced a competition challenging developers to create game apps that “generate useful health care data to improve health and health care.” The competition will be conducted in two phases. Phase One is an “open ideation phase” where interested developer teams… Continue reading Join the Robert Wood Johnson Foundation’s $200,000 Developer Challenge!
Out of the Office: PatientsLikeMe Visits ALS Pioneer Steve Saling
Earlier this month, PatientsLikeMe Co-Founder and President Ben Heywood, along with marketing intern Jenna Tobey, went to visit the Steve Saling ALS Residence, which is part of the Chelsea Jewish Foundation’s Leonard Florence Center for Living in Chelsea, MA. The foundation has been providing high-quality care for over 90 years and includes the nation’s only specialized… Continue reading Out of the Office: PatientsLikeMe Visits ALS Pioneer Steve Saling
My War with Psoriasis: An Interview with British Blogger Simon
Welcome to the latest installment of our “Spotlighted Blogger” series. Earlier this year, we focused on psoriasis bloggers, including Lissa, Alisha B., Jessica and Joni, and today we’re pleased to add a male perspective to the mix. PatientsLikeMe member Simon’s witty blog, entitled My Skin and I, discusses his decade-long battle with psoriasis, a chronic autoimmune condition that… Continue reading My War with Psoriasis: An Interview with British Blogger Simon
Today’s Photo: Enthusiasm and Hope at Walk MS
“There is still no cure, but at least now, thanks to these fundraising events, there are advancements in patient care, and there is hope.” – Multiple sclerosis (MS) patient Judy It may be winter now, but plans for next year’s disease-related fundraising events are underway. The question is: will you be taking part? For inspiration,… Continue reading Today’s Photo: Enthusiasm and Hope at Walk MS
Innovating Healthcare Through Shared Patient Knowledge
What happens when a patient finds another patient like them – for example, someone the same age with the same disease taking the same treatments? Problems get solved, says PatientsLikeMe Co-Founder and Chairman Jamie Heywood. Click on the box below to hear more of Jamie’s thoughts in his interview with Boston.com, the online home of… Continue reading Innovating Healthcare Through Shared Patient Knowledge
Not Recognizing the “New Me”
For many newly diagnosed patients, accepting help can be as difficult as accepting the diagnosis itself. According to some of the members of our Parkinson’s disease community, here are a few signs that you may be struggling with the idea of becoming someone who might need help. Have you found yourself feeling resentful when family,… Continue reading Not Recognizing the “New Me”