Perhaps you’ve heard of the Basketball Hall of Fame. Or the Rock and Roll Hall of Fame. But did you know there’s a Healthcare Internet Hall of Fame? Formed in 2011, the Healthcare Internet Hall of Fame was established “to honor individuals and organizations that have made outstanding, long-lasting contributions to the healthcare Internet industry”… Continue reading PatientsLikeMe Inducted into the Healthcare Internet Hall of Fame
Searching for a Diagnosis: An Interview with Lyme Disease Patient Pampe
Getting the right diagnosis can take many years, or in the case of PatientsLikeMe patient Pampe, many decades. After experiencing her first Lyme disease symptom in 1973, it was not until 2012 that she finally received a diagnosis that explained her many symptoms. Discover what hindered the process and what’s she learned along the way… Continue reading Searching for a Diagnosis: An Interview with Lyme Disease Patient Pampe
What We’re Reading at PatientsLikeMe
Here are some of the media items that grabbed our attention recently. Four Things I Learned from Living with a Chronic Illness Wise advice from a teenager who had to give up competitive gymnastics and find a new perspective on life after being diagnosed with a disease that causes chronic pain. Access to Doctors’ Notes… Continue reading What We’re Reading at PatientsLikeMe
Building a True Picture of Diabetes During American Diabetes Month
November is American Diabetes Month, and this year, the American Diabetes Association is working to reshape the understanding of diabetes. The goal is to raise awareness of the fact that diabetes is life-changing disease with a huge societal impact – and not a minor hindrance, as some people think. As part of this mission, the… Continue reading Building a True Picture of Diabetes During American Diabetes Month
The Five Different Types of Psoriasis
On Monday, we recognized World Psoriasis Day on our blog, and today we’d like to dig a little deeper into this lifelong autoimmune condition, which can cause skin lesions on almost any area of the body as well as psoriatic arthritis. Did you know that there are several types of psoriasis, and that they can… Continue reading The Five Different Types of Psoriasis
Leaving a Legacy of Data at PatientsLikeMe
Recently, our ALS community mourned the loss of Persevering, a highly proactive three-star member who was known for his unfailing efforts to support fellow patients, record and share data, report website problems and recruit ALS clinical trial participants. Offline, he was also a tireless advocate for ALS awareness and research, attending conferences and lobbying on… Continue reading Leaving a Legacy of Data at PatientsLikeMe
Putting Psoriasis on the Map for World Psoriasis Day
Today, October 29th, is World Psoriasis Day, sponsored by the International Federation of Psoriasis Associations. Here in the US, the National Psoriasis Foundation has created a special website – WorldofPsoriasis.com – for the occasion that illustrates the global nature of this chronic autoimmune disease, which affects 125 million people worldwide or nearly three percent of… Continue reading Putting Psoriasis on the Map for World Psoriasis Day
Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter
PatientsLikeMe member Bev Ribaudo (“YumaBev”) was diagnosed with Parkinson’s disease (PD) at age 47, but it hasn’t dampened her flair for comedy. “Humor comes naturally to me, and a little disease like Parkinson’s can’t take it away,” she says. In fact, her condition has given her a new purpose: entertaining other “Parkies” with her deep… Continue reading Spotlighted Author: Parkinson’s Humorist Bev Ribaudo on Dispensing Laughter
Art as Therapy in Parkinson’s Disease
Do you have a creative outlet that helps you cope with your health condition? Here are two examples of Parkinson’s disease (PD) patients in our community who are expressing their emotions through painting, despite hand tremors and other challenging symptoms. (See even more PD patient artwork in this inspiring forum thread.) “Iggy the Iguana” by… Continue reading Art as Therapy in Parkinson’s Disease
A Day in the Life of PatientsLikeMe Web Developer Adam Darowski
What’s it like to work at PatientsLikeMe? We are continuing to reveal just that with our monthly blog series “A Day in the Life,” which features PatientsLikeMe employees from different departments. Today we’d like to introduce you to Adam Darowski, a father of three who joined the technology team as a web developer exactly three years… Continue reading A Day in the Life of PatientsLikeMe Web Developer Adam Darowski