When we expanded PatientsLikeMe from serving a couple dozen conditions to serving several hundred overnight, we realized very quickly that our work was only just beginning. Since that early morning in April, our members (and staff) have added a lot more data to the system, including core symptom groups and commonly prescribed treatment surveys for… Continue reading Scoring with ATEC on PatientsLikeMe: New Feature for Patients with Autism
A Peek at Our August Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our August edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up… Continue reading A Peek at Our August Newsletter for Members
PatientsLikeMe’s Catherine Brownstein, PhD, MPH, Wins “Young Investigator Award” from the 12th International Congress of Human Genetics
The spotlight is on PatientsLikeMe’s research team this week – and deservedly so. On Tuesday, Research Director Paul Wicks, PhD, was named “Humanitarian of the Year” and a TR35 Honoree by MIT Technology Review. Now, we are extremely proud to announce that PatientsLikeMe Research Scientist Catherine Brownstein, PhD, MPH, has won a Young Investigator Award… Continue reading PatientsLikeMe’s Catherine Brownstein, PhD, MPH, Wins “Young Investigator Award” from the 12th International Congress of Human Genetics
Photo of the Week: Pedaling for Parkinson’s
Meet Cidney, a PatientsLikeMe member with Parkinson’s disease who recently took part in RAGBRAI (The Register’s Annual Great Bicycle Ride Across Iowa). Started in 1973, this annual seven-day bicycle ride is the oldest, largest and longest event of its kind. Here’s what Cidney, who lives in Las Vegas, Nevada, says about her experience: “Well I… Continue reading Photo of the Week: Pedaling for Parkinson’s
PatientsLikeMe’s Paul Wicks Ph.D. Named Humanitarian of the Year and TR35 Honoree by MIT Technology Review
CAMBRIDGE, MA–(Marketwire – Aug 23, 2011) – Today, PatientsLikeMe‘s Research Director, Paul Wicks Ph.D., was named a TR35 Honoree and spotlighted as Humanitarian of the Year by MIT Technology Review magazine, which profiled him in an in-depth article and video. The TR35 list recognizes the world’s top innovators under the age of 35, spanning medicine, energy, computing, communications,… Continue reading PatientsLikeMe’s Paul Wicks Ph.D. Named Humanitarian of the Year and TR35 Honoree by MIT Technology Review
What Do You Know About Psoriasis?
Last week, we told you about the Spotlight on Psoriasis and Psoriatic Arthritis Online Film Festival and how you could participate. But for those of you who don’t have psoriasis and don’t know much about it, we wanted to tell you a little more about this chronic condition as August is Psoriasis Awareness Month. An… Continue reading What Do You Know About Psoriasis?
ALS and Athleticism: What Have We Learned?
“Clinicians are used to seeing ALS patients who are or have been athletic. So is there a link, and if so, could exercise have a direct effect on the condition?”– BMJ Group Podcasts In 2010, PatientsLikeMe researchers collaborated with the University of Oxford Motor Neuron Disease (MND) Centre in the UK on a study about… Continue reading ALS and Athleticism: What Have We Learned?
I Will Not Be Quiet: An Interview with ALS Advocate Debra Quinn
Debra Quinn’s father, sister, aunt, grandmother and great aunt all passed away from ALS, and in 2009, she was diagnosed with ALS herself. This hereditary form of the disease is called familial ALS (fALS). After the loss of her younger sister in 2007, Debra decided that she could no longer stay silent.Today, she is “the… Continue reading I Will Not Be Quiet: An Interview with ALS Advocate Debra Quinn
Put Your Psoriasis Story on Video
The most common autoimmune disease in the US, psoriasis affects as many as 7.5 million Americans. Yet many people think it’s just “a skin thing.” To help debunk this misunderstanding and show all the ways psoriasis impacts one’s life, the National Psoriasis Foundation is holding the first-ever film festival for psoriasis and psoriatic arthritis, a… Continue reading Put Your Psoriasis Story on Video
Photo of the Week: Wheels in Motion
A number of our ALS and PLS members use wheelchairs, but that doesn’t keep them from participating in awareness walks sponsored by PatientsLikeMeInMotion. Please meet Power Mom, a grandmother of six who led a team at the Walk to Defeat ALS in Long Island, New York. Congrats to Power Mom and all of our sponsored teams… Continue reading Photo of the Week: Wheels in Motion