The medical term for a heightened or increased sense of smell is hyperosmia. Also known as olfactory hyperesthesia and hyperesthesia olfactoria, the word “hyperosmia” is a combination of the Greek work “hyper,” meaning “above,” and the Greek word “osme,” meaning “sense of smell.” Put together, hyperosmia is an abnormally increased sensitivity to smells and odors.… Continue reading Learn More About Your Heightened Sense of Smell
One for All: A Cross View of Patient Sharing
With more than 82,000 patients on PatientsLikeMe, there’s a lot of information being shared with one another. Last month, we highlighted how your sharing affects the experience of many on our site (One For All series). Today, we continue that theme by taking a look at information being shared across all of our communities that… Continue reading One for All: A Cross View of Patient Sharing
How Patients Like You Use Your Treatments in the Real World (Cont’d)
Here is our second blog about the two recent studies published in the Journal of Medical Internet Research (JMIR) about how patients like you are actually using your treatments. Study Two: Treatment Adherence Barriers Your doctor has likely told you that it’s best to take your medication as prescribed. But in the real world, there… Continue reading How Patients Like You Use Your Treatments in the Real World (Cont’d)
How Patients Like You Use Your Treatments in the Real World: Two New Studies
Ever wonder how many patients like you are using drugs off-label? Or how hard is it to take MS medications as prescribed? You’re about to find out. In January, the PatientsLikeMe R&D team published not one but two studies in the Journal of Medical Internet Research (JMIR) in an effort to provide answers about how… Continue reading How Patients Like You Use Your Treatments in the Real World: Two New Studies
What’s your experience with Polybion?
Polybion is a balanced B complex vitamin manufactured by Merck, Germany. Available in syrup, ampoule or tablet form, Polybion contains eight different B vitamins: thiamine (vitamin B1), riboflavin (vitamin B12), niacin (vitamin B3), panthothenic acid (vitamin B5), pyridoxine (vitamin B6), biotin (vitamin B7), folic acid (vitamin B9) and the cobalamins (vitamin B12). All types of… Continue reading What’s your experience with Polybion?
Learning from Others: Newsletter Highlights 2011
In the spirit of the New Year, here are some highlights from our recent newsletter. Read what patients like you have to say about what they’re most interested in learning from other patients this year. * * * (Amy) What are you most interested in learning from other patients this year? (bradley25 – Mood Conditions… Continue reading Learning from Others: Newsletter Highlights 2011
Mood Patient Interview: How Far I’ve Come
We continue our series from last week of getting to you the person, not just the “patient.” Here’s an interview with member “Bradley25,” a member of our PatientsLikeMe Mood Community who was interviewed for our January newsletter. Read on to learn more about how comparing his condition over time has helped give him hope… Continue reading Mood Patient Interview: How Far I’ve Come
Share Your Data to Untangle ALS!
Our ALS Community recently broke the 5,000-member mark, making it the largest of its kind in the world as well as the ideal platform for expedited research. And that’s just what we’re working on. Since the community’s launch in 2006, we’ve conducted a number of research studies, both internally and in collaboration with leaders in… Continue reading Share Your Data to Untangle ALS!
Share your experiences with the antidepressant ADCO Mirteron
ADCO Mirteron is an international brand of mirtazapine, a tetracyclic antidepressant that is used to treat depression and, in come cases, insomnia. At PatientsLikeMe, where more than 115,000 patients are sharing their experiences with prescription drugs, supplements and more, we have just one patient who reports taking ADCO Mirteron while more than 300 patients report… Continue reading Share your experiences with the antidepressant ADCO Mirteron
The Patient Voice: Exploring New Chapters
We’ve got more of the patient voice taking us into the weekend. Today we have an interview with AlwaysLearning, a 3-star member of our Parkinson’s Disease Community. We caught up with AlwaysLearning at the 2010 Parkinson’s Disease Unity Walk last spring. She shared with us how she learned about her diagnosis and some of the… Continue reading The Patient Voice: Exploring New Chapters