It’s MS Awareness Month and we’re excited to bring you information from our nonprofit partner, Accelerated Cure Project for MS. We briefly mentioned the Accelerated Cure Repository in our blog interview with Devic’s patient, Gracie. We thought we’d take the opportunity to ask The Accelerated Cure Project for MS a bit more about the repository… Continue reading Celebrating MS Awareness Month:
Interview with Accelerated Cure’s Sara Loud
Celebrating MS Awareness Month:
Capture and Share Your Transplant Journey
Following up on last week’s launch of the PatientsLikeMe Transplants Community, we present you with the next in our podcast series – PatientsLikeMe OnCallTM: Transplant Community Walk-Through. Podcast host, Aaron Fleishman, interviews Product Manager Maureen Oakes about new and upgraded functionality rolled out with the launch of this transplants community. Topics covered in this podcast… Continue reading Capture and Share Your Transplant Journey
Raising MS Awareness: Meet Ramilla…
At PatientsLikeMe, we believe in getting to know the person, not just the “patient.” That’s why we interview members each month in our newsletter to find out more about how they approach life. In honor of MS Awareness Month, we are pleased to share with you our recent interview with Ramilla, a three-star member of… Continue reading Raising MS Awareness: Meet Ramilla…
It’s World Kidney Day! Share on…
It’s World Kidney Day 2010 – a global health awareness campaign focused on the importance of kidneys and prevention of kidney disease. According to www.world kidneyday.org, “Many people are currently not aware that their kidneys are damaged and they might find out too late. Dialysis and transplantation can be prevented if kidney diseases are detected… Continue reading It’s World Kidney Day! Share on…
Multiple Sclerosis Awareness Week: Interview with Gardener
It’s National Multiple Sclerosis (MS) Awareness Week. There are more than 17,400 patients in the PatientsLikeMe MS community sharing data about their symptoms, treatments and side effects, lifestyle modifications and overall health outcomes. In honor of the week, and March being National MS Awareness Month, we will be posting interviews with MS patients and nonprofit… Continue reading Multiple Sclerosis Awareness Week: Interview with Gardener
PatientsLikeMe and Novartis Unite to Launch Community for Organ Transplant Recipients
Recognized by Fast Company as two of the 50 Most Innovative Companies in the World, PatientsLikeMe and Novartis have united to launch a new community for organ transplant recipients (including kidney, lung, heart and liver). In the news release announcement, PatientsLikeMe President Ben Heywood and Novartis CEO Joe Jimenez discuss what impact this community could… Continue reading PatientsLikeMe and Novartis Unite to Launch Community for Organ Transplant Recipients
It’s Rare Disease Day!
Interview with Gracie (Devic’s NMO Patient)
Today, we’re joining the National Organization for Rare Disorders (NORD) to help raise awareness for Rare Disease Day. In recognition of the day, we recently interviewed Gracie, a valued member of our Devic’s Neuromyelitis Optica (NMO) community. Devic’s NMO is a rare autoimmune inflammatory disorder which affects the optic nerve and spinal cord and is… Continue reading It’s Rare Disease Day!
Interview with Gracie (Devic’s NMO Patient)
Where are the Cures?
An interview with Myelin Repair Foundation
PatientsLikeMe partner, Myelin Repair Foundation (MRF), is a nonprofit organization devoted to reducing the time it takes to discover and develop treatments for multiple sclerosis (MS) patients. Recently, the MRF launched a campaign called “Where are the Cures?” – a site dedicated to a greater understanding of the barriers slowing the discovery and development of… Continue reading Where are the Cures?
An interview with Myelin Repair Foundation
FDA’s New Guidance on Patient-Reported Outcomes
We’re big fans of patient-reported outcomes (PROs) here at PatientsLikeMe, defined by the Food & Drug Administration (FDA) as: “A measurement based on a report that comes directly from the patient about the status of a patient’s health condition without amendment or interpretation of the patient’s response by a clinician or anyone else.” The self-report… Continue reading FDA’s New Guidance on Patient-Reported Outcomes
Who’s #2 in Healthcare Innovation?
You guessed it – PatientsLikeMe
It’s been an exciting few months for PatientsLikeMe. Here’s a quick recap… Today, Fast Company released its annual ranking of the 50 Most Innovative Companies in the World. PatientsLikeMe made #23 on the list alongside big league companies like Facebook, Disney, Novartis and Amazon. PatientsLikeMe was also named the second most innovative company in healthcare,… Continue reading Who’s #2 in Healthcare Innovation?
You guessed it – PatientsLikeMe