If you’re a longtime college basketball fan, you definitely know Jim Valvano (“Jimmy V”), the beloved former NC State basketball coach and award-winning broadcaster. Valvano’s battle with bone cancer galvanized the sports world, leading to the creation of the The V Foundation for Cancer Research by ESPN and Valvano in 1993. 18 years later, the foundation… Continue reading Remembering Jimmy V
Media Roundup: PatientsLikeMe in the News
PatientsLikeMe was recently highlighted in three national media outlets: CBS News, BNET and The Washington Post. See below for an excerpt of what each said about us. CBS News Health 2.0? 7 apps and sites that may save your life. “With information on more than 500 conditions, the crowdsourced research site [PatientsLikeMe] provides treatment and… Continue reading Media Roundup: PatientsLikeMe in the News
Daring and Dreaming
When you’re diagnosed with an illness, there are many unknowns ahead. For example, what’s the best future possible for you? At PatientsLikeMe, we believe that no one should have to face these questions alone. Like today’s patients, today’s youth are also facing uncertainties. With the world economy remaining in a precarious state, it can be… Continue reading Daring and Dreaming
BBK and PatientsLikeMe: Combining Strengths to Help Patients Everywhere
Recently, PatientsLikeMe Chief Marketing Officer David S. Williams III had the opportunity to participate in a podcast interview with the industry magazine PharmaVOICE. Along with Bonnie Brescia, a Founding Principal of BBK Worldwide, he fielded questions about how the new alliance between our two companies can both enhance and expedite the clinical trial recruitment process.… Continue reading BBK and PatientsLikeMe: Combining Strengths to Help Patients Everywhere
Taking It to the Streets: The Spring PatientsLikeMeInMotion Report
Every year, PatientsLikeMe sponsors run/walk/bike teams around the country through PatientsLikeMeInMotion. Led by a three-star member – someone with a complete health profile at PatientsLikeMe – each team receives bright blue PatientsLikeMe t-shirts, business cards and a donation towards their fundraising goal. Some of the events our members participate in include the Parkinson’s Unity Walk,… Continue reading Taking It to the Streets: The Spring PatientsLikeMeInMotion Report
A Peek at Our June Newsletter for Members
What kinds of things do we cover in our monthly newsletters for members? Take a look at the excerpt below from our June edition. Also, in case you didn’t know, anyone – whether a PatientsLikeMe member or not – can view our current and past newsletters in our Newsletter Archive. See what we’ve been up… Continue reading A Peek at Our June Newsletter for Members
Celebrate the Role of Social Media Today
Mashable, the pioneering digital and social media news site, has pronounced today Social Media Day. Why? “Social media has changed our lives,” they wrote in 2010, prior to launching the event. “It has not only changed the way we communicate, but the way we connect with one another, consume our news, conduct our work, organize… Continue reading Celebrate the Role of Social Media Today
Giving Health Statistics a Good Name
Mark Twain popularized the notion that there are three kinds of lies: “lies, damned lies, and statistics.” But there’s a cure for bad statistics, and that cure is openness. When our study of the effects of lithium in ALS was published in Nature Biotechnology, we not only presented the usual background and analysis, but we… Continue reading Giving Health Statistics a Good Name
Calling All Families Affected by Autism
Back in April, we wrote a blog post observing Autism Awareness Month. At that time, we had just over 100 members with an autism spectrum disorder (ASD). Now, just two months later, we’re pleased to report that our ASD membership has more than tripled with over 350 members reporting ASD and nearly 100 reporting Asperger’s… Continue reading Calling All Families Affected by Autism
It’s National HIV Testing Day
Have you been tested for HIV recently? Yes, you. As we wrote in a recent blog, an estimated one in five people with HIV in the US are unaware of their infection. That “one” could be you or someone you know. So instead of wondering, find out your status today during National HIV Testing Day, now… Continue reading It’s National HIV Testing Day