World Bipolar Day 2016 – Share how you’re #MoreThanADiagnosis

“What am I in the eyes of most people – a nonentity, an eccentric, or an unpleasant person – somebody who has no position in society and will never have; in short, the lowest of the low. All right, then – even if that were absolutely true, then I should one day like to show… Continue reading World Bipolar Day 2016 – Share how you’re #MoreThanADiagnosis

Digital Health Authority Monique Levy Joins PatientsLikeMe

New head of Customer Strategy and Value Delivery brings 20+ Years  of research and commercial experience to the role CAMBRIDGE, Mass., March 30, 2016—PatientsLikeMe today announced the appointment of Monique Levy as Senior Vice President, Head of Customer Strategy and Value Delivery. In the newly-created role, Levy will use her extensive experience to shape how… Continue reading Digital Health Authority Monique Levy Joins PatientsLikeMe

Study results: What patients like you said about sleep medications

Over a year ago, we partnered up with Merck Pharmaceuticals to learn more about insomnia and sleep medications. More than 1,200 PatientsLikeMe members responded to questions about how long they’ve had sleep problems, what treatments they’re using, what interferes with sleep most and what their overall quality of sleep is like. Here’s what we uncovered… Continue reading Study results: What patients like you said about sleep medications

“Each day is different and you do what you can” — Member Rick shares his story for Myeloma Action Month

A few weeks ago, we shared Marcia’s story for Myeloma Action Month. Today, we’re introducing Rick (ricktowner), another member of the multiple myeloma community. Before he was diagnosed in 2012, Rick and his wife led active lives volunteering in private, state and federal parks. Now in remission, he still travels when he can and rides… Continue reading “Each day is different and you do what you can” — Member Rick shares his story for Myeloma Action Month

Joy Morel Joins PatientsLikeMe

Veteran of Leading Tech Brands to Direct B2B and B2C Marketing Strategy CAMBRIDGE, Mass., March 23, 2016—PatientsLikeMe today announced the appointment of Joy Morel as Senior Vice President, Marketing, Patient Engagement and Business Intelligence. A global marketing strategist with both business-to-business and business-to-consumer branding experience, Morel now leads the 25-person team that focuses on attracting… Continue reading Joy Morel Joins PatientsLikeMe

Brain Injury Awareness Month: Roxana’s story from our partners at One Mind

March is Brain Injury Awareness Month, so we’re sharing the story of Roxana Delgado, whose husband Victor is one of the 2.5 million Americans who survive traumatic brain injuries (TBIs) each year.1 In this video from our partners at One Mind, Roxana opens up about the challenges of caring for Victor after he suffered a… Continue reading Brain Injury Awareness Month: Roxana’s story from our partners at One Mind

Meet Laura from the PatientsLikeMe Team of Advisors

  We’d like to introduce you to Laura, another member of your 2015-2016 Team of Advisors. When Laura was diagnosed in 2013, she’d never heard of Idiopathic Pulmonary Fibrosis (IPF). Flash forward three years, and she’s made patient education and advocacy her main focus. Laura has spoken before the FDA, regularly blogs about IPF on various… Continue reading Meet Laura from the PatientsLikeMe Team of Advisors

A year of milestones for Team Gleason – and they’re not slowing down.

Three years ago, we posted a piece on Steve Gleason, former NFL player for the New Orleans Saints. Diagnosed with ALS in 2011, Steve has made it his mission to spread awareness and advocacy. Since then, Team Gleason has been hard at work to improve the lives of those living with ALS and 2015 proved… Continue reading A year of milestones for Team Gleason – and they’re not slowing down.

MS and Pregnancy – From our Partners at MotherToBaby for MS Awareness Month”

It’s MS Awareness Month, and this year, we’re focusing on how the condition affects pregnant women and their babies. Our partners at MotherToBaby recently shared an article that answers some of the questions that might come up for women who have MS and are thinking about having children. Check it out below… MS: The Diagnosis… Continue reading MS and Pregnancy – From our Partners at MotherToBaby for MS Awareness Month”

“It does not define me!” Member Marcia shares her story for Myeloma Action Month

March is Myeloma Action Month, a time to raise awareness for the second most common blood cancer that affects 750,000 people worldwide — and over 2,500 PatientsLikeMe members. One of those members is Marcia (marcia_holman), who was given six months to live when she was diagnosed. Fifteen years later, Marcia sat down with us to… Continue reading “It does not define me!” Member Marcia shares her story for Myeloma Action Month