How do you make sense of all the information and stories that come with chronic illness? That’s exactly the challenge that the Patient Experience Team has taken on at PatientsLikeMe. Our goal is to create data visualizations that help you gain insight into your health, recognize emerging patterns and learn from one another’s experiences. Recently,… Continue reading Turning Stories into Data…and Data into Knowledge
Category: Patient Experiences
Let’s Hear What Men Have to Say
It’s National Men’s Health Week, and as a follow up to our blog on Monday, we thought you might enjoy hearing the perspectives of four male members of PatientsLikeMe – one with MS, two with Parkinson’s disease and one with HIV. Men may make up a smaller percentage of our 105,000+ patients, but their contributions… Continue reading Let’s Hear What Men Have to Say
Let’s Talk About Men’s Health
Did you know that, on average, American men are more likely to live sicker and die younger than American women? This has been called “the silent health crisis in America” by Dr. David Gremillion of the Men’s Health Network, and it’s one of the startling health statistics for men being brought to the surface during National… Continue reading Let’s Talk About Men’s Health
Janumet Side Effects: What patients say.
Janumet 50 1000 (see details) is the brand name (and dosage level) of sitagliptin-metformin, a combination prescription drug used in the management of type 2 diabetes. (50 refers to 50 mg of sitagliptin while 1000 refers to 1000 mg of metformin.) In addition to diet and exercise, Janumet 50 1000 is prescribed when the use… Continue reading Janumet Side Effects: What patients say.
Improving the Clinical Trial Process with Shared Data
“Today is a day of massive celebration of what health innovators have done,” said US Department of Health & Human Services’ Chief Technology Officer Todd Park this morning as he welcomed everyone to the 2nd Annual Health Data Initiative Forum (or “Health Data-Palooza,” as Park called it). The goal? To create “a self-propelled, open ‘ecosystem… Continue reading Improving the Clinical Trial Process with Shared Data
Coping with Nerve Sensitivity
Do you suffer from nerve sensitivity – or a feeling akin to pins and needles? Known clinically as paresthesia, this uncomfortable sensation if often described as a tingling, pricking and/or creeping feeling. For some people with nerve sensitivity, it can be painful for clothing to touch your skin. Although there is no objective causes, nerve… Continue reading Coping with Nerve Sensitivity
One for All: The Opportunity to Make Patients’ Lives Better
“Patients are giving us their data, and we need to honor that by doing something that advances their disease, their cause, their power in the world.” – Jamie Heywood This week marks the fourth and final installment of our latest video series, which explores what the recent changes at PatientsLikeMe mean for you as well… Continue reading One for All: The Opportunity to Make Patients’ Lives Better
PatientsLikeMe “Express Yourself” Video Contest: Voting Ends Tomorrow!
Have you voted yet? Tomorrow, June 3, is the last day for you to decide the winner of the first-ever PatientsLikeMe “Express Yourself” Video Contest. We asked, “How has PatientsLikeMe changed your life?” to our members, and they have responded with creative and amazing videos that the entire world can now see. Five winners will… Continue reading PatientsLikeMe “Express Yourself” Video Contest: Voting Ends Tomorrow!
30 Years of AIDS
On June 5, 1981, the Centers for Disease Control’s Morbidity and Mortality Weekly Report (MMWR) described the first reported cases of AIDS in the US. Thirty years later, AIDS.gov is observing this date with a campaign called “The Federal Government and 30 Years of AIDS.” What have we learned about Human Immunodefiency Virus (HIV) and… Continue reading 30 Years of AIDS
Get to Know a Mental Health Patient Today
If one in four American adults is affected by a mental health condition, that means someone within your immediate friends and family could be struggling with a treatable condition right now. Do you know who your “1 in 4” is? Or what signs to look for in someone who may be depressed? Two weeks ago,… Continue reading Get to Know a Mental Health Patient Today